Randomised, Double Blind, Placebo Controlled, Multicentre Study to Evaluate the Efficacy and Safety of Givinostat in Ambulant Patients With Duchenne Muscular Dystrophy

Who is this study for? Child male patients with Duchenne Muscular Dystrophy
What treatments are being studied? Givinostat
Status: Completed
Location: See all (42) locations...
Intervention Type: Drug
Study Type: Interventional
Study Phase: Phase 3
SUMMARY

Primary Objective The primary objective of the study was to establish the effects of givinostat versus placebo administered chronically over 18 months to slow disease progression in ambulant DMD subjects. Secondary Objectives The secondary objectives of this study were: * To assess the safety and tolerability of givinostat versus placebo administered chronically in DMD subjects * To evaluate the PK profile of givinostat administered chronically in DMD subjects * To evaluate the impact on quality of life (QoL) and activities of daily living of givinostat versus placebo administered chronically.

Eligibility
Participation Requirements
Sex: Male
Minimum Age: 6
Maximum Age: 17
Healthy Volunteers: f
View:

• Are an ambulant male aged ≥6 years at randomisation with DMD characteristic clinical symptoms or signs (e.g., proximal muscle weakness, Gowers' maneuver, elevated serum creatinine kinase level) already present at screening;

• Have DMD diagnosis confirmed by genetic testing;

• Are able to give informed assent and/or consent in writing signed by the subject and/or parent/legal guardian (according to local regulations);

• Are able to complete 2 Four Stairs Climb test (4SC) screening assessments; the results of these tests must be within ±1 second of each other;

• Have the mean of 2 screening 4SC assessments ≤8 seconds;

• Have time to rise from floor between ≥3 and \<10 seconds at screening

• Have manual muscle testing (MMT) of quadriceps at screening Grade ≥- 3;

• Have used systemic corticosteroids for a minimum of 6 months immediately prior to the start of study treatment, with no significant change in corticosteroids type or dosage or dosing regimen (excluding changes related to body weight change) for a minimum of 6 months immediately prior to start of study treatment and a reasonable expectation that dosage and dosing regimen will not change significantly for the duration of the study.

• Subjects must be willing to use adequate contraception.

Locations
United States
California
Neuromuscular Research Center UC Davis Department of Physical Medicine and Rehabilitation
Davis
Rady Children's Hospital center - UCSD Department of Neuroscience
San Diego
Colorado
Children's Hospital Colorado
Aurora
Connecticut
Connecticut Children's Medical Center - Division Neurology
Hartford
Florida
Child Health Research Institute - Department of Pediatrics
Gainesville
Nemours Children's Hospital
Orlando
Georgia
MD Rare Disease Research, LLC
Atlanta
Iowa
University of Iowa Children's Hospital
Iowa City
Minnesota
University of Minnesota - Department of Neurology
Minneapolis
Missouri
Washington University School of Medicine in St Louis - Department of Neurology
Saint Louis
Oregon
Shriners Hospitals for Children
Portland
Pennsylvania
The Children's Hospital of Philadelphia Colket Translational Research Building
Philadelphia
Virginia
Virginia Commonwealth University Childrens Hospital of Richmond at Virginia Commonwealth University
Richmond
Other Locations
Belgium
University Hospitals Leuven, Neuromuscular Reference Centre, Child Neurology
Leuven
Hospital de La Citadelle, Centre de Référence des Maladies Neuromuscolaires (CRMN)
Liege
Canada
Kinsmen Research Centre - Alberta Children's Hospital - Alberta Health Services
Calgary
Holland Bloorview Kids Rehabilitation Hospital
Toronto
The University of British Columbia, Children's and Womens Health Centre of BC Branch
Vancouver
France
CHU de Nantes - Hotel-Dieu - Hopital Nord Laennec, rez-de-chausse haut ail Ouest
Nantes
Hopital Armand Trousseau I-Motion, Plateforme d'essais cliniques pédiatriques
Paris
Germany
Universitatsklinikum Essen - Kinder und Jugendmedizin Neuropadiatrie
Essen
Klinik un Policlinik fur Kinder und Jugendmedizin - Universitatsklinikum Hamburg Eppendorf
Hamburg
Klinikum der Uniersitat Munchen - Campus Innenstadt
Munchen
Israel
Institute of Neurology - Schneider Children's Medical Center of Israel Kaplan, 14
Petach-tikva
Italy
IRCCS Istituto G.Gaslini, U.O.S.D. Centro Traslazionale di Miologia e Patologie Neurodegenerative
Genova
A.O.U. Policlinico G. Martino, U.O.C. Neurologia e Malattie Neuromuscolari
Messina
Centro Clinico NeMO Fondazione Serena ONLUS Area SUD
Milano
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, UOS di Neurologia Pediatrica
Milano
Fondazione IRCCS Istituto Neurologico Carlo Besta
Milano
Fondazione Policlinico Universitario A.Gemelli, UOC Neuropsichiatria Infantile
Roma
Ospedale Pediatrico Bambin Gesù, Malattie Neuromuscolari e Neurodegenerative
Roma
Netherlands
Leiden University Medical Center LUMC
Leiden
Radboud University Medical Centre
Nijmegen
Serbia
Clinic of Neurology and Psychiatry for Children and Youth - Neurology Department Dr. Subotic 6a,
Belgrade
Spain
Hospital Materno-Infantil - Passeig de la Vall d'Hebron
Barcelona
Hospital Sant Joan de Déu - Neuromuscular Pathology Unit
Esplugues De Llobregat
Hospital Universitario Virgen del Rocio
Sevilla
Hospital Universitari i Politécnic de la Fe - Servicio Neurologia
Valencia
United Kingdom
Alder Hey Children's Hospital NHS Trust
Liverpool
UCL Great Ormond Street Institute of Child Health, Dubowitz Neuromuscular Centre and MRC Centre for NMD
London
The John Walton Muscular Dystrophy Research Centre - Freeman Hospital - Newcastle University - Institute of Genetic Medicine
Newcastle Upon Tyne
The Robert Jones and Agnes Hunt Orthopaedic Hospital - NHS Foundation Trust
Oswestry
Time Frame
Start Date: 2017-06-06
Completion Date: 2022-02-22
Participants
Target number of participants: 179
Treatments
Active_comparator: givinostat
Givinostat oral suspension (10 mg/mL) twice daily
Placebo_comparator: placebo
Placebo oral suspension (10 mg/mL) twice daily
Sponsors
Leads: Italfarmaco
Collaborators: Syneos Health

This content was sourced from clinicaltrials.gov

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