Resiliency Training for Adolescent Neurofibromatosis Patients Via Videoconferencing With Skype
Status: Completed
Location: See location...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY
The aim of this research is to adapt the NF-specific adult version of the Skype 3RP for use with adolescents, and to test its feasibility, acceptability, and preliminary effect in improving quality of life, and in decreasing stress and psychological distress.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 12
Maximum Age: 17
Healthy Volunteers: t
View:
• Must be between the ages of 12 and 17
• Can read and speak English at or above the 6th grade level
• Diagnosis of neurofibromatosis type 1 or neurofibromatosis type 2 by a specialized medical provider
Locations
United States
Massachusetts
Massachusetts General Hospital
Boston
Time Frame
Start Date: 2015-01
Completion Date: 2017-12
Participants
Target number of participants: 51
Treatments
Experimental: Stress Management Group 1
Subjects will attend group stress management sessions via Skype once weekly for 8 weeks and learn stress/NF symptoms managements techniques.
Experimental: Stress Management Group 2
Subjects will attend group stress management sessions via Skype once weekly for 8 weeks and learn stress/NF symptoms managements techniques.
Authors
Elyse Park, Scott Plotkin
Related Therapeutic Areas
Sponsors
Collaborators: The Children's Tumor Foundation
Leads: Massachusetts General Hospital