Double-masked, Randomized, Controlled, Multiple-dose Study to Evaluate Efficacy, Safety, Tolerability and Syst. Exposure of QR-110 in Leber's Congenital Amaurosis (LCA) Due to c.2991+1655A>G Mutation (p.Cys998X) in the CEP290 Gene

Status: Active_not_recruiting
Location: See all (14) locations...
Intervention Type: Other, Drug
Study Type: Interventional
Study Phase: Phase 2/Phase 3
SUMMARY

The purpose of this double-masked, randomized, controlled, multiple-dose study is to evaluate the efficacy, safety, tolerability and systemic exposure of sepofarsen (QR-110) administered via intravitreal injection in subjects with Leber's Congenital Amaurosis (LCA) due to the CEP290 p.Cys998X mutation after 24 months of treatment

Eligibility
Participation Requirements
Sex: All
Minimum Age: 8
Healthy Volunteers: f
View:

• Male or female, ≥ 8 years of age at Screening with a clinical diagnosis of LCA10 and a molecular diagnosis of homozygosity or compound heterozygosity for the c.2991+1655A\>G mutation, based on genotyping analysis at Screening. A historic genotyping report from a certified laboratory is acceptable with Sponsor approval.

• BCVA better or equal to Logarithm of the Minimum Angle of Resolution (LogMAR) +3.0 (Hand Motion), and equal to or worse than LogMAR +0.4 in the treatment eye.

• Detectable outer nuclear layer (ONL) in the area of the macula.

• An electroretinogram (ERG) result consistent with LCA. A historic ERG result may be acceptable for eligibility.

• BCVA equal to or better than LP (logMAR +4), using the best BCVA reading at Month 12 and based on ETDRS or BRVT.

• Detectable outer nuclear layer (ONL) in the area of the macula.

• Clear ocular media and adequate pupillary dilation to permit good quality retinal imaging.

Locations
United States
Iowa
University of Iowa
Iowa City
Other Locations
Belgium
Universitair Ziekenhuis Gent (UZ)
Ghent
Brazil
INRET Clínica/ Santa Casa de Misericórdia de Belo Horizonte
Belo Horizonte
Federal University of São Paulo - Hospital São Paulo (UNIFESP-HSP)
São Paulo
Canada
McGill University Health Centre - Centre for Innovative Medicine
Montréal
The Hospital for Sick Children - SickKids
Toronto
France
Centre de maladies rares CHNO des Quinze Vingt
Paris
Hospital Civil de Strasbourg
Strasbourg
Germany
Justus-Liebig Universität - Department of Ophthalmology
Gießen
University of Tuebingen - Inst. for Ophthalmic Research
Tuebingen
Italy
Eye Clinic University of Campania Luigi Vanvitelli
Naples
Netherlands
Amsterdam University Medica Center - Locatie AMC
Amsterdam
Het Oogziekenhuis Rotterdam
Rotterdam
United Kingdom
Moorfields Eye Hospital - NHS Foundation Trust
London
Time Frame
Start Date: 2019-04-04
Completion Date: 2023-03
Participants
Target number of participants: 36
Treatments
Experimental: Group 1: Dose 1 sepofarsen (QR-110)
Initial loading dose, followed by maintenance doses at month 3 and every 6 months there after, administered by intravitreal injection (24 months duration of treatment). After 12 months treatment of the contralateral eye may be initiated
Active_comparator: Group 2: Dose 2 sepofarsen (QR-110)
Initial loading dose, followed by maintenance doses at month 3 and every 6 months there after, administered by intravitreal injection (24 months duration of treatment). After 12 months treatment of the contralateral eye may be initiated
Sham_comparator: Group 3: Sham
Sham procedure (no experimental drug administered), Day 1, month 3 and every six months there after. After 12 months cross over to active study drug may be initiated
Related Therapeutic Areas
Sponsors
Leads: ProQR Therapeutics

This content was sourced from clinicaltrials.gov