Phase 2 Clinical Pharmacology Study to Assess Dystrophin Levels in Subjects With nmDMD Before and After Treatment With Ataluren

Status: Completed
Location: See all (9) locations...
Intervention Type: Drug
Study Type: Interventional
Study Phase: Phase 2
SUMMARY

This study is designed to evaluate the ability of ataluren to increase dystrophin protein levels in muscle cells of participants with nmDMD. The study will evaluate the levels of dystrophin before and after 40 weeks of ataluren therapy using muscle biopsies and 2 validated assay methods, electrochemiluminescence (ECL) and immunohistochemistry.

Eligibility
Participation Requirements
Sex: Male
Minimum Age: 2
Maximum Age: 7
Healthy Volunteers: f
View:

• Evidence of signed and dated informed consent/assent document(s) indicating that the participant (and/or his parent/legal guardian) has been informed of all pertinent aspects of the trial.

• Phenotypic evidence of duchenne muscular dystrophy (DMD) based on the onset of characteristic clinical symptoms or signs (for example, proximal muscle weakness, waddling gait, and Gowers' maneuver) and an elevated serum creatine kinase (CK). Medical documentation of phenotypic evidence of DMD needs to be provided upon request by the Sponsor's medical monitor.

• Documentation of the presence of a nonsense point mutation in the dystrophin gene as determined by gene sequencing. Review and approval of documentation by sponsor or designee is required prior to enrollment.

• Willing to undergo muscle biopsy.

Locations
United States
Arizona
Phoenix Childrens Hospital
Phoenix
California
University of California, Los Angeles (UCLA)
Los Angeles
University of California (UC) Davis Medical Center
Sacramento
Kansas
University of Kansas Medical Center
Kansas City
Minnesota
University of Minnesota
Minneapolis
New York
Columbia University College of Physicians & Surgeons
New York
Texas
Texas Children's Hospital
Houston
University of Texas Heath Science Center at San Antonio
San Antonio
Virginia
Children's Hospital of the King's Daughters
Norfolk
Time Frame
Start Date: 2018-12-21
Completion Date: 2020-10-23
Participants
Target number of participants: 20
Treatments
Experimental: Ataluren
Participants will receive ataluren oral suspension 10 milligrams per kilogram (mg/kg) in the morning, 10 mg/kg at midday, and 20 mg/kg in the evening each day for 40 weeks.
Sponsors
Leads: PTC Therapeutics

This content was sourced from clinicaltrials.gov

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