Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 161 doctor with experience in Ehlers-Danlos Syndrome (EDS) near New York, US. Of these, 146 are Experienced, 14 are Advanced and 1 are Elite.

    Location
    LocationClose
    161 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Elite in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      New York Institute Of Technology

      600 Northern Blvd, 
      Greenvale, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Bernadette Riley is a primary care provider, practicing in Family Medicine in Greenvale, New York. Dr. Riley is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypermobile Joints, and Prerenal Azotemia.

      Richard A. Adamski
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Northwell Health Physician Partners Medicine Specialties And Ophthalmology At Patchogue

      205 South Ocean Avenue, 
      Patchogue, NY 
      Experience:
      12+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Dr. Richard Adamski is a rheumatologist in Patchogue, NY and Bay Shore, NY and is affiliated with Northwell Health South Shore University Hospital. He received his medical degree from St. George's University School of Medicine and has been in practice 12 years. He also speaks multiple languages, including Spanish. He is one of the few Northeast's region advanced specialists and Northwell's only specialist in genetic connective tissue disorders involving hypermobility like Ehler-Danlos Syndrome, Marfan's, and so on. He has extensive experience in evaluating and treating dysautonomia, POTS, MCAS, and musculoskeletal and spinal involvement in EDS. He specializes in Complex Rare Autoimmune & Autoinflammatory rheumatologic disorders such as autoinflammatory syndromes, vasculitis, idiopathic inflammatory myositis, systemic sclerosis and related syndromes, and overlap systemic lupus erythematosus syndromes. He is one of the few Northeast's region advanced specialists in genetic connective tissue disorders in hypermobility like Ehler-Danlos Syndrome, Marfan's, and so on. He has extensive management knowledge of more common inflammatory arthritides and autoimmune disease as is one of Northwell's eastern region providers for Setpoint Vagus Nerve Stimulator management. Dr. Adamski is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Raynaud Phenomenon, Rheumatoid Arthritis (RA), and Sjogren Syndrome.

      Bruce Gelb
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
      Languages Spoken:
      English

      Bruce Gelb is a Pediatric Cardiologist in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Allergy and Immunology | Rheumatology | Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Allergy and Immunology | Rheumatology | Internal Medicine
      47 East 77th Street, Suite 201, 
      New York, NY 
      Languages Spoken:
      English, Russian

      Olga Belostotsky is an Internal Medicine specialist and an Allergy and Immunologist in New York, New York. Dr. Belostotsky is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Fibromyalgia, Undifferentiated Connective Tissue Disease (UCTD), Ehlers-Danlos Syndrome (EDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Mount Sinai Pediatric Visiting Doctors And Complex Care Program

      1468 Madison Ave Fl 4, 
      New York, NY 
      Languages Spoken:
      English

      Marjorie Gayanilo is a Pediatric Cardiologist in New York, New York. Dr. Gayanilo is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Pulmonary Atresia with Intact Ventricular Septum, Right Ventricle Hypoplasia, Ventricular Septal Defects, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Rama D. Kastury
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Obstetrics and Gynecology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Obstetrics and Gynecology
      1554 Northern Boulevard, Floor 5, 
      Manhasset, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Rama Kastury is a Pediatrics specialist and an Obstetrics and Gynecologist in Manhasset, New York. Dr. Kastury is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Turner Syndrome, Intersex, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Erica Fernandes
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      26901 76th Avenue, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider in New Hyde Park, New York. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Scalp-Ear-Nipple Syndrome, and Snyder-Robinson Syndrome.

      Farrah Gutwein
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      WPHPA Of Hawthorne

      24 Saw Mill River Road,, Suite 206, 
      Hawthorne, NY 
      Languages Spoken:
      English, Hebrew, Spanish
      Offers Telehealth

      Board-certified rheumatologist Dr. Farrah Gutwein has been in practice for over 10 years. She received her medical degree from the New York College of Osteopathic Medicine, after which she completed an internship and residency in internal medicine, followed by a fellowship in rheumatology, at the New York Medical College at Westchester Medical Center. Dr. Gutwein is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Psoriatic Arthritis, Psoriasis, Rheumatoid Arthritis (RA), and Osteoporosis.

      Krystina N. Choinski
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      755 North Broadway, Suite 230, 
      Sleepy Hollow, NY 
      Languages Spoken:
      English

      Krystina Choinski is a Vascular Surgeon in Sleepy Hollow, New York. Dr. Choinski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Peripheral Artery Disease, Deep Vein Thrombosis, Atherosclerosis, Simultaneous Pancreas Kidney Transplant, and Fasciotomy.

      Alfio Carroccio
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      Northwell Health Physician Partners Vascular Surgery At Lenox Hill

      130 East 77th Street, Black Hall, 13th Floor, 
      New York, NY 
      Languages Spoken:
      English

      Alfio Carroccio is a Vascular Surgeon in New York, New York. Dr. Carroccio is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Gangrene, Carotid Artery Surgery, and Aneurysm Repair.

      Gary Giangola
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      Northwell Health Physician Partners Vascular Surgery At Lenox Hill

      130 East 77th Street, Black Hall, 13th Floor, 
      New York, NY 
      Languages Spoken:
      English

      Gary Giangola is a Vascular Surgeon in New York, New York. Dr. Giangola is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Carotid Artery Disease, Carotid Artery Surgery, and Aneurysm Repair.

      Jeffrey Greenfield
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Weill Medical College Of Cornell

      520 E 70th St, 
      New York, NY 
      Languages Spoken:
      English

      Jeffrey Greenfield is a Neurosurgery provider in New York, New York. Dr. Greenfield is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Chiari Malformation, Chiari Malformation Type 2, Syringomyelia, Chiari Malformation Type 1, and Gastrostomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Pediatric Cardiology Associates LLC

      725 Irving Ave Ste 804, 
      Syracuse,, NY 
      Languages Spoken:
      English

      Lauren Tague is a Pediatric Cardiologist in Syracuse,, New York. Dr. Tague is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Developmental and Behavioral Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Developmental and Behavioral Pediatrics
      46 Hamlet Drive, 
      Commack, NY 
      Languages Spoken:
      English, Hebrew

      Liat Jarkon is a Pediatrics specialist and a Developmental and Behavioral Pediatrics provider in Commack, New York. Dr. Jarkon is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS) and Ehlers-Danlos Syndrome (EDS).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Midtown East Medical PC

      120 E 56th St Rm 530, 
      New York, NY 
      Languages Spoken:
      English

      Julie Bikhman is a primary care provider, practicing in Family Medicine in New York, New York. Dr. Bikhman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Congenital Sucrase-Isomaltase Deficiency, Glucose Phosphate Isomerase Deficiency, Glucose-Galactose Malabsorption Deficiency, and Multiple Carboxylase Deficiency.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Pediatric Cardiology Associates LLC

      725 Irving Ave Ste 804, 
      Syracuse, NY 
      Languages Spoken:
      English

      Matthew Egan is a Pediatric Cardiologist in Syracuse, New York. Dr. Egan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Heart Murmurs.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Pediatric Cardiology Associates LLC

      725 Irving Ave Ste 804, 
      Syracuse,, NY 
      Languages Spoken:
      English

      Christopher Prendergast is a Pediatric Cardiologist in Syracuse,, New York. Dr. Prendergast is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Coarctation of the Aorta, Isthmian Coarctation, and Patent Ductus Arteriosus.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Annenberg Building

      1468 Madison Ave Ste 350, 
      New York, NY 
      Languages Spoken:
      English

      Kenan Stern is a Pediatric Cardiologist in New York, New York. Dr. Stern is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Pulmonary Atresia with Intact Ventricular Septum, Coarctation of the Aorta, Hypoplastic Left Heart Syndrome (HLHS), and Ventricular Septal Defects.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Canton-Potsdam Hospital

      80 E Main St, 
      Canton, NY 
      Languages Spoken:
      English

      Lawrence Ivan is a primary care provider, practicing in Family Medicine in Canton, New York. Dr. Ivan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cholecystitis, Acute Kidney Failure, Gallbladder Disease, Hip Replacement, and Pacemaker Implantation.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      90 South Bedford Road, 
      Mount Kisco, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Asha Shrestha is a Rheumatologist in Mount Kisco, New York. Dr. Shrestha is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, Rheumatoid Arthritis (RA), and Psoriatic Arthritis.

      Showing 1-20 of 161

      Last Updated: 01/09/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in New York, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Ehlers-Danlos Syndrome (EDS) Doctors by city