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    Last Updated: 01/09/2026

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    MediFind found 16 doctor with experience in Craniofrontonasal Dysplasia near Michigan, US. Of these, 10 are Experienced and 6 are Advanced.

    Location
    LocationClose
    16 providers found
      Dana G. Fletcher
      Advanced in Craniofrontonasal Dysplasia
      Endocrinology
      Advanced in Craniofrontonasal Dysplasia
      Endocrinology
      1540 Lake Lansing Rd, Ste 201, 
      Lansing, MI 
      Languages Spoken:
      English

      Dana Fletcher is an Endocrinologist in Lansing, Michigan. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Hypothyroidism, Obesity in Children, Sjogren-Larsson Syndrome, and Cornelia De Lange Syndrome.

      Advanced in Craniofrontonasal Dysplasia
      Family Medicine
      Advanced in Craniofrontonasal Dysplasia
      Family Medicine
      1003 E Mount Hope Ave, 
      Lansing, MI 
      Languages Spoken:
      English

      Joseph Kozlowski is a primary care provider, practicing in Family Medicine in Lansing, Michigan. Dr. Kozlowski is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are GEMSS Syndrome, Osteoglophonic Dysplasia, Camptodactyly Syndrome Guadalajara Type 1, and Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2).

      Advanced in Craniofrontonasal Dysplasia
      Advanced in Craniofrontonasal Dysplasia

      Office

      601 W Chisholm St, 
      Alpena, MI 
      Languages Spoken:
      English

      Jorge Gonzalez is a Neurologist in Alpena, Michigan. Dr. Gonzalez is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Seizures, Kleine Levin Syndrome, Progressive Myoclonic Epilepsy, and Unverricht-Lundborg Syndrome.

      Learn about our expert tiers
      Advanced in Craniofrontonasal Dysplasia
      Cardiology
      Advanced in Craniofrontonasal Dysplasia
      Cardiology

      Capital Cardiology PC

      1200 E Michigan Ave Ste 725, 
      Lansing, MI 
      Languages Spoken:
      English

      Milind Karve is a Cardiologist in Lansing, Michigan. Dr. Karve is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Angina, Coronary Heart Disease, Atherosclerosis, Pacemaker Implantation, and Percutaneous Coronary Intervention (PCI).

      Advanced in Craniofrontonasal Dysplasia
      Internal Medicine
      Advanced in Craniofrontonasal Dysplasia
      Internal Medicine

      Holland Community Hospital

      3235 N Wellness Dr, 120b Internal Medicine Nor, 
      Holland, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Timothy Conlon is a primary care provider, practicing in Internal Medicine in Holland, Michigan. Dr. Conlon is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Peripheral Artery Disease, Myasthenia Gravis, Tourette Syndrome, and Shingles. Dr. Conlon is currently accepting new patients.

      Advanced in Craniofrontonasal Dysplasia
      Internal Medicine
      Advanced in Craniofrontonasal Dysplasia
      Internal Medicine

      Aspirus Ironwood Hospital And Clinics Inc

      N10565 Grandview Lane, 
      Ironwood, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Kim Ogle is a primary care provider, practicing in Internal Medicine in Ironwood, Michigan. Dr. Ogle is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Familial Colorectal Cancer, Type 2 Diabetes (T2D), Rapadilino Syndrome, Coffin-Siris Syndrome, and Endoscopy. Dr. Ogle is currently accepting new patients.

      Courtney M. Mehock
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Livonia Family Healthcare

      37508 7 Mile Road, 
      Livonia, MI 
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Courtney Mehock is a primary care provider, practicing in Family Medicine in Livonia, Michigan. Dr. Mehock has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Bronchitis, and Sitosterolemia. Dr. Mehock is currently accepting new patients.

      Donald J. Gingerich
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Corewell Health Pennock Hospital Multispecialty Center - Ionia

      2776 South State Road, 
      Ionia, MI 
      Experience:
      33+ years
      Languages Spoken:
      English
      Accepting New Patients

      Donald Gingerich is a primary care provider, practicing in Family Medicine in Ionia, Michigan. Dr. Gingerich has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Chronic B-Cell Leukemia (CBCL), Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, and Type 2 Diabetes (T2D). Dr. Gingerich is currently accepting new patients.

      Manhal H. Naoumi
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Grace Family Care

      31500 Dequindre Road, 
      Warren, MI 
      Experience:
      30+ years
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Manhal Naoumi is a primary care provider, practicing in Family Medicine in Warren, Michigan. Dr. Naoumi has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Necrosis, COVID-19, Peptic Ulcer, Endoscopy, and Gastrostomy. Dr. Naoumi is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Experienced in Craniofrontonasal Dysplasia

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Mahalakshmi Honasoge is an Endocrinologist in Detroit, Michigan. Dr. Honasoge is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Type 2 Diabetes (T2D), and Klinefelter Syndrome.

      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Regents Of The University Of Michigan

      14700 E Old Us Hwy 12, 
      Chelsea, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anne Kittendorf is a primary care provider, practicing in Family Medicine in Chelsea, Michigan. Dr. Kittendorf is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Maturity Onset Diabetes of the Young, Vertigo, Type 1 Diabetes (T1D), and Type 2 Diabetes (T2D). Dr. Kittendorf is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Internal Medicine
      Experienced in Craniofrontonasal Dysplasia
      Internal Medicine

      Metropolitan Hospital

      5900 Byron Ctr Ave Sw, 
      Wyoming, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Natalie Parr is a primary care provider, practicing in Internal Medicine in Wyoming, Michigan. Dr. Parr is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Type 2 Diabetes (T2D), Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Parr is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Experienced in Craniofrontonasal Dysplasia

      Jawad A Shah, MD PC

      4800 S Saginaw St, Suite 1800, 
      Flint, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Rany Aburashed is a Neurologist in Flint, Michigan. Dr. Aburashed is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Epilepsy, and Seizures. Dr. Aburashed is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Endocrinology
      Experienced in Craniofrontonasal Dysplasia
      Endocrinology
      24 Frank Lloyd Wright Dr, Lobby C Suite 1300, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Craig Jaffe is an Endocrinologist in Ann Arbor, Michigan. Dr. Jaffe is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Hypogonadotropic Hypogonadism, Kallmann Syndrome, Growth Hormone Deficiency (GHD), and Hypopituitarism.

      Experienced in Craniofrontonasal Dysplasia
      Experienced in Craniofrontonasal Dysplasia

      Henry Ford Health System

      6773 W Maple Rd, 
      West Bloomfield, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marina Novikova is a Neurologist in West Bloomfield, Michigan. Dr. Novikova is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Cerebellar Degeneration, Normal Pressure Hydrocephalus, Congenital Cardiovascular Shunt, and Dementia. Dr. Novikova is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Avocare Health Services

      6 Parklane Blvd, Suite 525, 
      Dearborn, MI 
      Languages Spoken:
      English
      Offers Telehealth

      James Walker is a primary care provider, practicing in Family Medicine in Dearborn, Michigan. Dr. Walker is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Saddle Pulmonary Embolism, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

      Showing 1-16 of 16

      Last Updated: 01/09/2026

      What is the definition of Craniofrontonasal Dysplasia?

      Craniofrontonasal dysplasia is a rare genetic condition with several skeletal defects. Main features of this condition include widely spaced eyes (hypertelorism), bifid tip of the nose, broad head (brachycephaly), prominent forehead (frontal bossing), asymmetry of facial features, abnoral form of the eyebrow, and/or crossed eyes (strabismus). Other described features include narrow sloping shoulders, malformed bone of the center of the chest (sternum), malformation of the collarbone (clavicle); backward curvature of the spine (lordosis); and/or abnormal lateral curvature of the spine (scoliosis). Several problems leading to asymmetry of the sides of the body have being described, such as asymmetric lengths of the legs or arms, asymmetric breasts, one shoulder that is higher than the other (Sprengel defomity) and absence of the chest wall muscles or bones in one side of the body with abnormally short, webbed fingers on the hand on the same side (Poland syndrome). Females affected with this condition generally have more symptoms than affected males.

      When should I see a Craniofrontonasal Dysplasia doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Craniofrontonasal Dysplasia doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Craniofrontonasal Dysplasia doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Craniofrontonasal Dysplasia doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Craniofrontonasal Dysplasia doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. 

      Why is it important to get a second opinion from a different Craniofrontonasal Dysplasia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Craniofrontonasal Dysplasia doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Craniofrontonasal Dysplasia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Craniofrontonasal Dysplasia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Craniofrontonasal Dysplasia doctors in Michigan, US?

      Look for the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Craniofrontonasal Dysplasia doctor that offers video calls?

      Look for the filter feature on the left-side of the Craniofrontonasal Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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