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    Last Updated: 01/09/2026

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    MediFind found 10 doctor with experience in Craniofrontonasal Dysplasia near Minnesota, US. Of these, 7 are Experienced and 3 are Advanced.

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    LocationClose
    10 providers found
      Advanced in Craniofrontonasal Dysplasia
      Pediatric Cardiology
      Advanced in Craniofrontonasal Dysplasia
      Pediatric Cardiology

      University Of Minnesota Medical Center Fairview Riverside

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Dr. Lohr is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Wiedemann-Steiner Syndrome.

      Advanced in Craniofrontonasal Dysplasia
      Endocrinology
      Advanced in Craniofrontonasal Dysplasia
      Endocrinology

      Allina Health System

      8675 Valley Creek Rd, 
      Woodbury, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Luke Benedict is an Endocrinologist in Woodbury, Minnesota. Dr. Benedict is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Type 1 Diabetes (T1D), Hypogonadotropic Hypogonadism, Hypogonadism, and Isolated Hypogonadotropic Hypogonadism.

      Advanced in Craniofrontonasal Dysplasia
      Endocrinology
      Advanced in Craniofrontonasal Dysplasia
      Endocrinology

      The Duluth Clinic Ltd

      400 E 3rd St, 
      Duluth, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Nahi Kiblawi is an Endocrinologist in Duluth, Minnesota. Dr. Kiblawi is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Klinefelter Syndrome, Hyperparathyroidism, Obesity in Children, and Secondary Adrenal Insufficiency.

      Learn about our expert tiers
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Mayo Clinic Health System-Fairmont

      800 Medical Ctr Dr, 
      Fairmont, MN 
      Languages Spoken:
      English, German
      Accepting New Patients

      Jeffery Green is a primary care provider, practicing in Family Medicine in Fairmont, Minnesota. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Lung Cancer, Maturity Onset Diabetes of the Young, Hypothyroidism, and Type 2 Diabetes (T2D). Dr. Green is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Experienced in Craniofrontonasal Dysplasia

      Minnesota Heart Clinic P.A.

      6405 France Ave S Ste W200, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Shamane March is a Cardiologist in Minneapolis, Minnesota. Dr. March is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Sengers Syndrome, Mosaic Trisomy 7, Trisomy 3 Mosaicism, and Trisomy 12 Mosaicism.

      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      1216 Ryans Rd, 
      Worthington, MN 
      Languages Spoken:
      English, Filipino
      Accepting New Patients

      Gerardo Lantoria is a primary care provider, practicing in Family Medicine in Worthington, Minnesota. Dr. Lantoria is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Familial Hypercholesterolemia, Heterozygous Familial Hypercholesterolemia (HeFH), Defective Apolipoprotein B-100, and Hyperlipoproteinemia Type 4. Dr. Lantoria is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Pediatrics | Medical Genetics
      Experienced in Craniofrontonasal Dysplasia
      Pediatrics | Medical Genetics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Experienced in Craniofrontonasal Dysplasia

      Perham Hospital District

      1000 Coney St W, 
      Perham, MN 
      Experience:
      47+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Blickenstaff is a primary care provider, practicing in Family Medicine in Perham, Minnesota. Dr. Blickenstaff has been practicing medicine for over 47 years and is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Peripheral Neuropathy, Parkinson's Disease, Seasonal Affective Disorder (SAD), Small Cell Lung Cancer (SCLC), and Endoscopy. Dr. Blickenstaff is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Internal Medicine
      Experienced in Craniofrontonasal Dysplasia
      Internal Medicine

      Fairview Clinics

      830 Prairie Ctr Dr, 
      Eden Prairie, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kevin Wycoff is a primary care provider, practicing in Internal Medicine in Eden Prairie, Minnesota. Dr. Wycoff is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Type 2 Diabetes (T2D), High Cholesterol, Maturity Onset Diabetes of the Young, and Obesity in Children. Dr. Wycoff is currently accepting new patients.

      Experienced in Craniofrontonasal Dysplasia
      Family Medicine
      Experienced in Craniofrontonasal Dysplasia
      Family Medicine

      Winona Health Services

      855 Mankato Ave, 
      Winona, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Mary Michener is a primary care provider, practicing in Family Medicine in Winona, Minnesota. Dr. Michener is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Brown-Sequard Syndrome. Dr. Michener is currently accepting new patients.

      Showing 1-10 of 10

      Last Updated: 01/09/2026

      What is the definition of Craniofrontonasal Dysplasia?

      Craniofrontonasal dysplasia is a rare genetic condition with several skeletal defects. Main features of this condition include widely spaced eyes (hypertelorism), bifid tip of the nose, broad head (brachycephaly), prominent forehead (frontal bossing), asymmetry of facial features, abnoral form of the eyebrow, and/or crossed eyes (strabismus). Other described features include narrow sloping shoulders, malformed bone of the center of the chest (sternum), malformation of the collarbone (clavicle); backward curvature of the spine (lordosis); and/or abnormal lateral curvature of the spine (scoliosis). Several problems leading to asymmetry of the sides of the body have being described, such as asymmetric lengths of the legs or arms, asymmetric breasts, one shoulder that is higher than the other (Sprengel defomity) and absence of the chest wall muscles or bones in one side of the body with abnormally short, webbed fingers on the hand on the same side (Poland syndrome). Females affected with this condition generally have more symptoms than affected males.

      When should I see a Craniofrontonasal Dysplasia doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Craniofrontonasal Dysplasia doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Craniofrontonasal Dysplasia doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Craniofrontonasal Dysplasia doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Craniofrontonasal Dysplasia doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. 

      Why is it important to get a second opinion from a different Craniofrontonasal Dysplasia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Craniofrontonasal Dysplasia doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Craniofrontonasal Dysplasia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Craniofrontonasal Dysplasia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Craniofrontonasal Dysplasia doctors in Minnesota, US?

      Look for the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Craniofrontonasal Dysplasia doctor that offers video calls?

      Look for the filter feature on the left-side of the Craniofrontonasal Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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