Improving Social Relationships for Adolescents with Central Disorders of Hypersomnolence

Status: Recruiting
Location: See location...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY

The goal of this study is to test a web-based psychoeducational resource for adolescents with central disorders of hypersomnolence and their families. The investigators hope to assess the website's usability, acceptability, and feasibility, as well as its potential effect on social relationship health. Participants will be asked to review the content of the psychoeducational websites. The participants will then provide feedback on the website, as well as the adolescent's social relationships and social health before and after reviewing the website through online surveys.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 10
Maximum Age: 17
Healthy Volunteers: f
View:

• Adolescent from 10-17 years of age and parent of the adolescent

• Adolescent has physician-diagnosed narcolepsy type 1 or type 2, or idiopathic hypersomnia

• English fluency

• Interest in learning more about how to improve social health for adolescents with a CDH

Locations
United States
Massachusetts
Boston Children's Hospital
RECRUITING
Boston
Contact Information
Primary
Grace Y Wang
grace.wang@childrens.harvard.edu
617-919-6212
Backup
Eric Zhou, PhD
Time Frame
Start Date: 2024-04-01
Estimated Completion Date: 2025-05-01
Participants
Target number of participants: 45
Treatments
Experimental: Web-based psychoeducational Resource
Eligible families will be provided with website access instructions. Parents and children will be instructed to review the materials separately. The intervention will provide each person with individualized action items to be discussed as a family. It is anticipated that reviewing all of the psychoeducational materials will take the parent/child approximately one hour, resulting in a total intervention burden of two hours for the family. Participants will be encouraged to return to the website as often as needed to review content. For the purposes of this project, they will be instructed to review all intervention materials within one month of receiving the website access instructions.
Sponsors
Leads: Boston Children's Hospital
Collaborators: American Academy of Sleep Medicine

This content was sourced from clinicaltrials.gov