Open-Label, Single-Arm, Phase 3 Study to Evaluate Safety, Tolerability, and Pharmacokinetics of Fenfluramine (Hydrochloride) in Infants 1 Year to Less Than 2 Years of Age With Dravet Syndrome

Status: Active_not_recruiting
Location: See all (12) locations...
Intervention Type: Drug
Study Type: Interventional
Study Phase: Phase 3
SUMMARY

The primary purpose of this study is evaluate the safety and tolerability of fenfluramine hydrochloride (HCl) 0.2 to 0.8 mg/kg/day in infants 1 year to less than 2 years of age with Dravet syndrome.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 1
Maximum Age: 1
Healthy Volunteers: f
View:

• Participant is ≥1 to \<2 years of age as of the day of the first administration of study drug

• Participant has a documented diagnosis or likely diagnosis of Dravet syndrome according to the International League Against Epilepsy (ILAE) criteria and as agreed by the Epilepsy Study Consortium (ESC)

• Participant must be currently receiving ≥1 concomitant anti seizure medication (ASM) at a stable dose for ≥4 weeks prior to the Screening Visit and is expected to remain stable throughout the study. Rescue medications for seizures are not counted towards the total number of ASMs

• Participant must have drug resistant epilepsy as defined as a history of failure of adequate trials of 2 tolerated, appropriately chosen and used antiepileptic drug schedules (whether as monotherapies or in combination) to achieve sustained seizure freedom

• Participants must have ≥1 countable motor seizures (CMS) during the Baseline Period. The CMS include distinct seizures of generalized tonic-clonic, bilateral clonic, focal motor, bilateral tonic, atonic (drop), bilateral tonic/atonic, or focal to bilateral tonic-clonic type. If the participant fails to have ≥1 qualifying seizures in 28 days, the Baseline Period may be extended by an additional 14 days with Sponsor approval. Participants with an extended Baseline Period must still have ≥1 CMS in the 28 days immediately prior to the day of the first administration of study drug

• Body weight is ≥8 kg

• Males and females

Locations
United States
Tennessee
Ep0213 105
Memphis
Texas
Ep0213 107
Dallas
Washington
Ep0213 103
Seattle
Other Locations
Belgium
Ep0213 502
Brussels
Ep0213 501
Edegem
Germany
Ep0213 303
Bielefeld
Italy
Ep0213 202
Florence
Ep0213 203
Genova
Ep0213 201
Roma
Ep0213 204
Roma
United Kingdom
Ep0213 403
Glasgow
Ep0213 401
London
Time Frame
Start Date: 2024-05-21
Completion Date: 2026-11-20
Participants
Target number of participants: 25
Treatments
Experimental: Fenfluramine Open-label
All study participants will initiate fenfluramine hydrochloride (HCl) treatment at 0.2 mg/kg/day in the Dose-Finding Period and may be up-titrated to a maximum of 0.8 mg/kg/day based on the Investigators discretion. The dose of fenfluramine HCl can be flexibly titrated during the Maintenance Period. Study participants, who discontinue early will participate in the Taper Period. All participants will complete an End of Treatment (EOT) Visit.
Sponsors
Leads: UCB BIOSCIENCES, Inc.

This content was sourced from clinicaltrials.gov