The Scleroderma Registry & Repository
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: t
View:
• Individuals older than 18 years of age with Scleroderma
Locations
United States
New York
Hospital for Special Surgery
RECRUITING
New York
Contact Information
Primary
Eliza Pelrine, BA
pelrinee@hss.edu
(212)774-2123
Backup
Emily Bakaj, BA
bakaje@hss.edu
(212)774-7620
Time Frame
Start Date: 2006-08
Estimated Completion Date: 2030-01
Participants
Target number of participants: 300
Treatments
Patients with Scleroderma
Patients who have been diagnosed at any point in their life with Scleroderma will compose the cohort.
Related Therapeutic Areas
Sponsors
Leads: Hospital for Special Surgery, New York