Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as an Elite provider by MediFind in the treatment of Parkes Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.

Dr. Doris Da May Lin is an Associate Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. She specializes in neuroradiology. Dr. Lin received her B.A. in chemistry from the University of Pennsylvania, and then pursued a joint M.D./Ph.D. degree at the Yale University School of Medicine, with graduate training in the neurosciences. She completed a medical internship at the University of Pennsylvania Hospital and a diagnostic radiology residency at New York Presbyterian Hospital-Cornell. After a two-year neuroradiology fellowship, she joined the faculty at Johns Hopkins. Dr. Lin is rated as a Distinguished provider by MediFind in the treatment of Parkes Weber Syndrome. Her top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Subdural Effusion, CACH Syndrome, and Endovascular Embolization.

Dr. Jaqueline Weissman is an assistant professor in the Department of Neurology, Kennedy Krieger Institute, Department of Pediatrics Johns Hopkins Hospital and Institute of Genomic Medicine at Johns Hopkins Hospital. She is also director of the Center for Tuberous Sclerosis and Related Disorder at Kennedy Krieger Institute. She focuses on genetic and epigenetic causes of neurodevelopmental disorders - particularly intellectual disability - and how specific genetic and epigenetic changes lead to specific neuroanatomic, neurophysiologic and cognitive phenotypes. She is also interested in developing specific cognitive profiles in genetic syndromes as potential outcome measures for trials and to help localize deficits. Currently most of her research is centered around Kabuki Syndrome. Dr. Weissman received her B.A. with. Dr. Harris is rated as an Advanced provider by MediFind in the treatment of Parkes Weber Syndrome. Her top areas of expertise are Borjeson-Forssman-Lehmann Syndrome, Coffin-Lowry Syndrome, Galactosialidosis, and Odontotrichomelic Syndrome.

Dr. Richard Southard’s specialty is in pediatric radiology, with more than 25 years of experience in private practice and hospital settings. He joins Johns Hopkins from Phoenix Children’s Hospital, where he is vice chief of Radiology Operations. Previously, he served as a pediatric radiologist, partner and president of Radiology Consultants North Dallas, a Texas-based private practice group. He earned his medical degree from The Ohio State University before going on to an internship and residency in pediatric medicine at Nationwide Children’s Hospital, followed by a diagnostic radiology residency at The University of Pittsburgh Medical Center and fellowship in pediatric radiology at Pittsburgh Children’s Hospital. Dr. Southard’s research has focused on CT radiation dose reduction, imaging of congenital heart disease, implementation and validation of iterative reconstruction noise reduction techniques and dual-energy spectral CT applications in children. He joined the pediatric radiology faculty in February 2023 and will be working remotely from Arizona. Dr. Southard is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Tracheobronchopathia Osteoplastica, Bronchogenic Cyst, Dextrocardia, and Collins Pope Syndrome.

I am a pediatric neurologist with expertise in epilepsy and electroencephalography (EEG). My clinical and research interests include genetics of epilepsy, medical management of patients with intractable epilepsy and presurgical evaluation of patients who are candidates for epilepsy surgery. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Seizures, Benign Rolandic Epilepsy, Rett Syndrome, Lennox-Gastaut Syndrome (LGS), and Thrombectomy.

Dr. Anna L. Grossberg is an Assistant Professor of Dermatology and Pediatrics at the Johns Hopkins University School of Medicine. She specializes in Pediatric Dermatology. Dr. Grossberg is the Director of the Division of Pediatric Dermatology, as well as the Director of the Dermatology Residency Program and the Pediatric Dermatology Fellowship Program at Johns Hopkins. Dr. Grossberg graduated summa cum laude from Princeton University, and then completed her medical training at the University of California Los Angeles, where she graduated as a member of the Alpha Omega Alpha. Dr. Grossberg is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. Her top areas of expertise are Lichen Simplex Chronicus, Linear Hamartoma Syndrome, Vascular Birthmark, and Familial Multiple Nevi Flammei.

Dr. Clifford Weiss is a Professor of Radiology and Radiological Science. He also holds appointments in Surgery and Biomedical Engineering. Additionally, he serves as Medical Director of the Johns Hopkins Center for Bioengineering Innovation and Design (CBID), the Director of the Johns Hopkins HHT Center of Excellence as well as Director of the Johns Hopkins Vascular Anomalies Center. Dr. Weiss' clinical focus lies in vascular and interventional radiology with a particular focus on the diagnosis and treatment of vascular malformations. This includes venous and lymphatic malformations, arteriovenous malformations, pulmonary arteriovenous malformations and Hereditary Hemorrhagic Telangiectasia (HHT) and varicoceles. Dr. Weiss also is a pioneer in the use of MRI for interventional guidance (iMRI), especially for the treatment of vascular malformations. Dr. Weiss' research focuses primarily on the preclinical and clinical development of Bariatric Embolization, a new endovascular procedure designed to help fight obesity, and on the development of new embolic therapies and devices. Dr. Weiss is the Deputy Editor of Interventional Content for the journal Radiology. Dr. Weiss received his B.A. from Dartmouth College in 1995, his M.D. from the Johns Hopkins University School of Medicine in 2001. He completed an internship in internal medicine on the Osler Service in 2002, his residency in Diagnostic Radiology in 2007, and a Fellowship in Vascular and Interventional radiology in 2008, all at The Johns Hopkins Hospital. He is a Fellow both of the Society of Interventional Radiology (SIR) and of Cardiovascular and Interventional Radiological Society of Europe (CIRSE). Dr. Weiss is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Pulmonary Arteriovenous Malformation (PAVM), Pulmonary Arteriovenous Fistula, Arteriovenous Malformation, Liver Embolization, and Embolectomy.

Dr. Gill cares for children with epilepsy and developmental, behavioral or psychiatric challenges. Her research and clinical interests include tuberous sclerosis complex, EEG biomarker development, and the intersection of epilepsy, genetics, and neurodevelopment. Dr. Gill is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Sturge-Weber Syndrome, and West Syndrome.

Juan Baez is a Pediatric Radiologist and a Radiologist in Rockville, Maryland. Dr. Baez is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Congenital Athymia, Scoliosis, Appendicitis, and Hypoplasia of the Tibia with Polydactyly.

Seyed Emamian is a Radiologist in Gaithersburg, Maryland. Dr. Emamian is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Vertigo, Bronchogenic Cyst, Tenosynovitis, and Acropectoral Syndrome. Dr. Emamian is currently accepting new patients.

Lawrence Vidaver is a primary care provider, practicing in Internal Medicine in Glen Burnie, Maryland. Dr. Vidaver is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Follicular Ichthyosis, Acquired Ichthyosis, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Vidaver is currently accepting new patients.

Gregory Holmes is a primary care provider, practicing in Family Medicine in Cambridge, Maryland. Dr. Holmes is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Maturity Onset Diabetes of the Young. Dr. Holmes is currently accepting new patients.

Adebowale Prest is a primary care provider, practicing in Family Medicine in Cambridge, Maryland. Dr. Prest is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. Her top areas of expertise are High Cholesterol, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension. Dr. Prest is currently accepting new patients.

Lucas Couch is a primary care provider, practicing in Family Medicine in Frederick, Maryland. Dr. Couch is rated as an Experienced provider by MediFind in the treatment of Parkes Weber Syndrome. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and High Cholesterol. Dr. Couch is currently accepting new patients.