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    Last Updated: 03/06/2025

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    MediFind found 87 doctor with experience in RASopathies near Minnesota, US. Of these, 80 are Experienced, 6 are Advanced and 1 are Distinguished.

    Location:
    87 providers found
    Bradley S. Miller
    Experienced in RASopathies
    Pediatric Endocrinology | Pediatrics | Endocrinology
    Experienced in RASopathies
    Pediatric Endocrinology | Pediatrics | Endocrinology

    University Of Minnesota Masonic Children's Hospital

    2512 S 7th St, Floor 3, 
    Minneapolis, MN 
    Experience:
    28+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Bradley Miller completed his Pediatric residency (2000) and Pediatric Endocrinology fellowship (2003) at the Mayo Clinic. He is a Professor in Pediatric Endocrinology, and has been a member of the division since 2003. Dr. Miller has an interest in the role of the growth hormone (GH)/insulin-like growth factor (IGF) system in normal and abnormal growth in children. Additionally, he is interested in the growth and development of children following adversity including cancer and its therapies, fetal alcohol exposure, and international adoption. Dr. Miller is also interested in the endocrine aspects of abnormal glycosylation in children with Congenital Disorders of Glycosylation. Lastly, Dr. Miller is also interested in Achondroplasia and other skeletal dysplasia conditions. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pediatric Growth Hormone Deficiency, Growth Hormone Deficiency (GHD), Hypopituitarism, Precocious Puberty, and Hormone Replacement Therapy (HRT).

    Distinguished in RASopathies
    Pediatric Hematology Oncology | Pediatrics
    Distinguished in RASopathies
    Pediatric Hematology Oncology | Pediatrics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Christopher Moertel is a Pediatric Hematologist Oncology specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Moertel and is rated as a Distinguished provider by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Joseph A. Dearani
    Advanced in RASopathies
    Thoracic Surgery | General Surgery | Vascular Surgery
    Advanced in RASopathies
    Thoracic Surgery | General Surgery | Vascular Surgery

    Mayo Clinic

    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Dearani is a Thoracic Surgeon and a General Surgeon in Rochester, Minnesota. Dr. Dearani and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Ebstein's Anomaly, Hypertrophic Cardiomyopathy (HCM), Congenital Heart Disease (CHD), Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG). Dr. Dearani is currently accepting new patients.

    Are you looking for a specific type of RASopathies?

    Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

    Learn about our expert tiers
    Advanced in RASopathies
    Medical Genetics
    Advanced in RASopathies
    Medical Genetics

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English

    Dusica Babovic is a Medical Genetics provider in Rochester, Minnesota. Dr. Babovic and is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

    Advanced in RASopathies
    Otolaryngology
    Advanced in RASopathies
    Otolaryngology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Matthew Carlson is an Otolaryngologist in Rochester, Minnesota. Dr. Carlson and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Hearing Loss, Stapedectomy, and Gamma Knife Radiosurgery. Dr. Carlson is currently accepting new patients.

    Advanced in RASopathies
    Neurosurgery
    Advanced in RASopathies
    Neurosurgery

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Link is a Neurosurgery provider in Rochester, Minnesota. Dr. Link and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Neuroendocrine Tumor, Gamma Knife Radiosurgery, and Microvascular Decompression. Dr. Link is currently accepting new patients.

    Advanced in RASopathies
    Medical Genetics | Pediatrics | Pediatric Neurology
    Advanced in RASopathies
    Medical Genetics | Pediatrics | Pediatric Neurology

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
    Experience:
    47+ years
    Languages Spoken:
    English
    Accepting New Patients

    William Dobyns is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Dobyns has been practicing medicine for over 47 years and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Increased Head Circumference, Lissencephaly, Polymicrogyria, and Cortical Dysplasia. Dr. Dobyns is currently accepting new patients.

    Advanced in RASopathies
    Advanced in RASopathies

    Allina Health System

    800 E 28th St, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    John Trusheim is a Neurologist in Minneapolis, Minnesota. Dr. Trusheim and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor. Dr. Trusheim is currently accepting new patients.

    Experienced in RASopathies
    Pediatric Cardiology | Pediatrics | Cardiology
    Experienced in RASopathies
    Pediatric Cardiology | Pediatrics | Cardiology

    Fairview Express Care

    909 Fulton St Se, Suite 4 392, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lohr and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, Robinow Syndrome, Cardiomyopathic Lentiginosis, and Cardiofaciocutaneous Syndrome.

    Hartzell V. Schaff
    Experienced in RASopathies
    Thoracic Surgery | General Surgery
    Experienced in RASopathies
    Thoracic Surgery | General Surgery
    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Hartzell Schaff is a Thoracic Surgeon and a General Surgeon in Rochester, Minnesota. Dr. Schaff and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Constrictive Pericarditis, Mitral Valve Regurgitation, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG). Dr. Schaff is currently accepting new patients.

    Richard C. Daly
    Experienced in RASopathies
    Thoracic Surgery
    Experienced in RASopathies
    Thoracic Surgery

    Mayo Clinic

    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Richard Daly is a Thoracic Surgeon in Rochester, Minnesota. Dr. Daly and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Mitral Valve Regurgitation, Constrictive Pericarditis, Mitral Valve Prolapse, Heart Transplant, and Heart Bypass Surgery. Dr. Daly is currently accepting new patients.

    Experienced in RASopathies
    Neurology | Pediatric Neurology
    Experienced in RASopathies
    Neurology | Pediatric Neurology
    2512 S 7th St, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Kenney-Jung is a Neurologist and a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Kenney-Jung and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Adrenoleukodystrophy (ALD), Cardiofaciocutaneous Syndrome, CACH Syndrome, Seizures, and Thrombectomy. Dr. Kenney-Jung is currently accepting new patients.

    Experienced in RASopathies
    Pediatric Cardiology | Cardiology | Pediatrics
    Experienced in RASopathies
    Pediatric Cardiology | Cardiology | Pediatrics

    Mayo Clinic Health System-Northwest Wisconsin Region Inc

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Frank Cetta is a Pediatric Cardiologist and a Cardiologist in Rochester, Minnesota. Dr. Cetta and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Ebstein's Anomaly, Right Ventricle Hypoplasia, Atrioventricular Septal Defect, Stent Placement, and Heart Transplant. Dr. Cetta is currently accepting new patients.

    Experienced in RASopathies
    Experienced in RASopathies
    200 1st St Sw, 
    Rochester, MN 
    Experience:
    26+ years
    Languages Spoken:
    English

    Salman Kirmani is a Pediatrics provider in Rochester, Minnesota. Dr. Kirmani has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Symphalangism Distal, Molybdenum Cofactor Deficiency (MoCD), Microcephaly, and Achalasia Microcephaly Syndrome.

    Experienced in RASopathies
    Medical Genetics | Neurology | Pediatrics
    Experienced in RASopathies
    Medical Genetics | Neurology | Pediatrics

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, Cowden Syndrome, Bannayan-Riley-Ruvalcaba Syndrome, and Lhermitte-Duclos Disease.

    Experienced in RASopathies
    Family Medicine | Emergency Medicine
    Experienced in RASopathies
    Family Medicine | Emergency Medicine
    404 W Fountain St, 
    Albert Lea, MN 
    Languages Spoken:
    English

    Steven Wiese is an Emergency Medicine provider in Albert Lea, Minnesota. Dr. Wiese and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Legius Syndrome, RASopathies, Heart Failure with Preserved Ejection Fraction (HFpEF), and Neurofibromatosis.

    Experienced in RASopathies
    Nurse Practitioner
    Experienced in RASopathies
    Nurse Practitioner

    Allina Health System

    303 Catlin St, 
    Buffalo, MN 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Terri Allen is a Nurse Practitioner in Buffalo, Minnesota. Allen has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Legius Syndrome, RASopathies, and Neurofibromatosis. Allen is currently accepting new patients.

    Experienced in RASopathies
    Neurology
    Experienced in RASopathies
    Neurology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Joon Uhm is a Neurologist in Rochester, Minnesota. Dr. Uhm and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor.

    Experienced in RASopathies
    Pediatrics | Pediatric Cardiology
    Experienced in RASopathies
    Pediatrics | Pediatric Cardiology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English, Hindi, Punjabi, Urdu
    Accepting New Patients

    Talha Niaz is a Pediatrics specialist and a Pediatric Cardiologist in Rochester, Minnesota. Dr. Niaz and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Bicuspid Aortic Valve, Heterotaxy Syndrome, Ventricular Fibrillation, and Aortic Regurgitation. Dr. Niaz is currently accepting new patients.

    Experienced in RASopathies
    Neurosurgery
    Experienced in RASopathies
    Neurosurgery

    Allina Health System

    440 Elm St E, 
    Annandale, MN 
    Languages Spoken:
    English

    Michael Mccue is a Neurosurgery provider in Annandale, Minnesota. Dr. Mccue and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Radiation Induced Meningioma, Meningioma, Hydrocephalus, Awake Craniotomy, and Microdiscectomy.

    Showing 1-20 of 87

    Last Updated: 03/06/2025

    What is the definition of RASopathies?

    RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

    When should I see a RASopathies doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a RASopathies doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank RASopathies doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by RASopathies doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a RASopathies doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

    Why is it important to get a second opinion from a different RASopathies doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a RASopathies doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my RASopathies doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female RASopathies doctors in Minnesota, US?

    Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a RASopathies doctor that offers video calls?

    Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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