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    Last Updated: 03/06/2025

     
     
     
     
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    If you have a rare or serious condition, you may want to seek advice from the best doctor you can find.
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    Elite
    • Global leaders in their field
    • Publish in medical journals frequently
    • Speak at conferences
    • Participate in clinical trials
    • Likely to work with cutting edge treatments
    • Likely to hold leadership positions in their organization
    Distinguished
    • Leaders in their field
    • Strong research portfolio
    • Likely to work with cutting edge treatments
    • Likely to be a leader in their field regionally
    Advanced
    • Excellent at diagnosing and treating conditions.
    • Treat many patients and have extensive experience in their field.
    • May not publish, speak at conferences, or participate in clinical trials.
    Experienced
    • Primarily treat patients rather than focus on research.
    • May be specialists or primary care physicians.
    • Have great experience in diagnosing and treating conditions.
    • Majority of doctors fall within this level of expertise.
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    MediFind found 42 doctor with experience in RASopathies near Oregon, US. Of these, 39 are Experienced and 3 are Advanced.

    Location:
    42 providers found
    Experienced in RASopathies
    Neurosurgery
    Experienced in RASopathies
    Neurosurgery

    The Oregon Clinic, PC

    1111 Ne 99th Ave, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Pankaj Gore is a Neurosurgery provider in Portland, Oregon. Dr. Gore and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pituitary Tumor, Meningioma, Arachnoid Cysts, Balloon Sinuplasty, and Awake Craniotomy. Dr. Gore is currently accepting new patients.

    Experienced in RASopathies
    General Surgery
    Experienced in RASopathies
    General Surgery

    University Professional Services

    15700 Sw Greystone Ct, 
    Beaverton, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Brett Sheppard is a General Surgeon in Beaverton, Oregon. Dr. Sheppard and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pancreatic Cancer, Familial Pancreatic Cancer, Ampullary Cancer, Pancreatectomy, and Splenectomy. Dr. Sheppard is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Experienced in RASopathies
    Nurse Practitioner
    Experienced in RASopathies
    Nurse Practitioner

    Brookings Harbor Medical Center P.C.

    446 Oak Street, PO Box 6579, 
    Brookings, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Heidi Carlson is a Nurse Practitioner in Brookings, Oregon. Carlson and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Angiomyoma, Short Stature (Growth Disorders), Sheehan Syndrome, and Lung Nodules. Carlson is currently accepting new patients.

    Are you looking for a specific type of RASopathies?

    Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

    Learn about our expert tiers
    Advanced in RASopathies
    Advanced in RASopathies

    Providence Health And Services Oregon

    9135 Sw Barnes Rd, Suite 461, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Gliomatosis Cerebri.

    Advanced in RASopathies
    Neurosurgery
    Advanced in RASopathies
    Neurosurgery

    University Professional Services

    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Kim Burchiel is a Neurosurgery provider in Portland, Oregon. Dr. Burchiel and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Trigeminal Neuralgia, Neuralgia, Essential Tremor, Deep Brain Stimulation, and Microvascular Decompression.

    Advanced in RASopathies
    Radiology | Neuroradiology
    Advanced in RASopathies
    Radiology | Neuroradiology

    University Professional Services

    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Jeffrey Pollock is a Radiologist and a Neuroradiologist in Portland, Oregon. Dr. Pollock and is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Brain Aneurysm, Cerebral Arteriovenous Malformation, and RASopathies.

    Experienced in RASopathies
    Neurosurgery
    Experienced in RASopathies
    Neurosurgery

    University Professional Services

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English, Turkish
    Accepting New Patients
    Offers Telehealth

    Aclan Dogan is a Neurosurgery provider in Portland, Oregon. Dr. Dogan and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Pituitary Tumor, Awake Craniotomy, and Thrombectomy. Dr. Dogan is currently accepting new patients.

    Experienced in RASopathies
    Physician Assistant
    Experienced in RASopathies
    Physician Assistant

    University Professional Services

    3303 S Bond Ave, 
    Portland, OR 
    Experience:
    15+ years
    Languages Spoken:
    English
    Offers Telehealth

    Antonia Gragg is a Physician Assistant in Portland, Oregon. Gragg has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Neurofibromatosis, Legius Syndrome, and Hereditary Ataxia.

    Experienced in RASopathies
    Experienced in RASopathies

    Grande Ronde Hospital Inc

    900 Sunset Dr, 
    La Grande, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Rodrigo Lim is a Neurologist in La Grande, Oregon. Dr. Lim and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Autosomal Dominant Partial Epilepsy with Auditory Features, Infantile Axonal Neuropathy, Hereditary Sensory and Autonomic Neuropathy Type 2, and Congenital Insensitivity to Pain with Anhidrosis. Dr. Lim is currently accepting new patients.

    Experienced in RASopathies
    Family Medicine
    Experienced in RASopathies
    Family Medicine

    Wallowa County Health Care District

    601 Medical Pkwy, 
    Enterprise, OR 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Elizabeth Powers is a Family Medicine provider in Enterprise, Oregon. Dr. Powers and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Sciatica, Scoliosis, Vertigo, Type 2 Diabetes (T2D), and Endoscopy. Dr. Powers is currently accepting new patients.

    Experienced in RASopathies
    Experienced in RASopathies

    Asante Physician Partners

    2825 E Barnett Rd, 
    Medford, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Oscar Sanchez is a Neurologist in Medford, Oregon. Dr. Sanchez and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Epilepsy, Memory Loss, Seizures, and Hepatocerebral Degeneration. Dr. Sanchez is currently accepting new patients.

    Experienced in RASopathies
    Experienced in RASopathies

    University Professional Services

    15700 Sw Greystone Ct, 
    Beaverton, OR 
    Languages Spoken:
    English

    Alice Fung is a Radiologist in Beaverton, Oregon. Dr. Fung and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Visceromegaly, Neuroendocrine Tumor, and Rhabdomyosarcoma Embryonal.

    Experienced in RASopathies
    Plastic Surgery | Hand Surgery
    Experienced in RASopathies
    Plastic Surgery | Hand Surgery

    University Professional Services

    15700 Sw Greystone Ct, 
    Beaverton, OR 
    Languages Spoken:
    English

    Joel Solomon is a Plastic Surgeon and a Hand Surgeon in Beaverton, Oregon. Dr. Solomon and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Dupuytren Contracture, Melanoma, Ganglion Cyst, and Polydactyly.

    Experienced in RASopathies
    Nurse Practitioner
    Experienced in RASopathies
    Nurse Practitioner

    Providence Health And Services Oregon

    9135 Sw Barnes Rd, Suite 461, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Lauren Popp is a Nurse Practitioner in Portland, Oregon. Popp and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and RASopathies.

    Experienced in RASopathies
    Dermatology
    Experienced in RASopathies
    Dermatology
    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Alfons Krol is a Dermatologist in Portland, Oregon. Dr. Krol and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are PHACE Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Clouston Syndrome.

    Experienced in RASopathies
    Hematology Oncology | Hematology | Oncology
    Experienced in RASopathies
    Hematology Oncology | Hematology | Oncology

    University Professional Services

    3303 S Bond Ave, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Heinrich is a Hematologist Oncology specialist and a Hematologist in Portland, Oregon. Dr. Heinrich and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Gastrointestinal Stromal Tumor, Chronic Myelogenous Leukemia (CML), Mesenchymoma, and Undifferentiated Pleomorphic Sarcoma. Dr. Heinrich is currently accepting new patients.

    Experienced in RASopathies
    Family Medicine
    Experienced in RASopathies
    Family Medicine

    Rogue Community Health

    19 Myrtle St, 
    Medford, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Weiner is a Family Medicine provider in Medford, Oregon. Dr. Weiner and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Generalized Anxiety Disorder (GAD), Post-Traumatic Stress Disorder (PTSD), Type 2 Diabetes (T2D), and Seasonal Affective Disorder (SAD). Dr. Weiner is currently accepting new patients.

    Experienced in RASopathies
    Neurosurgery | Neurology
    Experienced in RASopathies
    Neurosurgery | Neurology

    Tuality Medical Group LLC

    335 Se 8th Ave, 
    Hillsboro, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Barbara Lazio is a Neurosurgery specialist and a Neurologist in Hillsboro, Oregon. Dr. Lazio and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Spinal Stenosis, Subdural Hematoma, Posterior Fossa Tumor, Microdiscectomy, and Herniated Disc Surgery. Dr. Lazio is currently accepting new patients.

    Experienced in RASopathies
    Nurse Practitioner
    Experienced in RASopathies
    Nurse Practitioner

    Oregon Health And Science University

    3930 Se Division St, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Bruce Marks is a Nurse Practitioner in Portland, Oregon. Marks and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Legius Syndrome, Neurofibromatosis, RASopathies, and Muscle Spasms. Marks is currently accepting new patients.

    Experienced in RASopathies
    Family Medicine
    Experienced in RASopathies
    Family Medicine

    University Professional Services

    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Emily Myers is a Family Medicine provider in Portland, Oregon. Dr. Myers and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Opioid Use Disorder, Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Intrauterine Device Insertion, and Colonoscopy. Dr. Myers is currently accepting new patients.

    Showing 1-20 of 42

    Last Updated: 03/06/2025

    What is the definition of RASopathies?

    RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

    When should I see a RASopathies doctor in Oregon, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a RASopathies doctor in Oregon, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank RASopathies doctors in Oregon, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by RASopathies doctors in Oregon, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a RASopathies doctor in Oregon, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

    Why is it important to get a second opinion from a different RASopathies doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a RASopathies doctor in Oregon, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my RASopathies doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female RASopathies doctors in Oregon, US?

    Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a RASopathies doctor that offers video calls?

    Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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