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    Last Updated: 03/06/2025

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    • Excellent at diagnosing and treating conditions.
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    MediFind found 6 doctor with experience in Aicardi Syndrome near Boston, MA. Of these, 4 are Experienced and 2 are Advanced.

    Location:
    Boston, MA, US
    6 providers found

    Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

    330 Brookline Ave, 
    Boston, MA 
     (2.7 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Greenstein is a Neurologist in Boston, Massachusetts. Dr. Greenstein and is rated as an Experienced provider by MediFind in the treatment of Aicardi Syndrome. Her top areas of expertise are Spinocerebellar Ataxia, Cervical Myelopathy, Harding Ataxia, and Spastic Ataxia Charlevoix-Saguenay Type.

    Pediatric Neurology | Pediatrics | Neurology
    Pediatric Neurology | Pediatrics | Neurology

    C H Neurology Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Phillip Pearl is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Pearl and is rated as an Experienced provider by MediFind in the treatment of Aicardi Syndrome. His top areas of expertise are Succinic Semialdehyde Dehydrogenase Deficiency, Epilepsy, Seizures, and Epilepsy in Children. Dr. Pearl is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?

    Foundation Medical Partners Inc

    10 Prospect St, Suite 302, 
    Nashua, NH 
     (34.5 mi)
    Languages Spoken:
    English, Sign Language
    Accepting New Patients
    Offers Telehealth

    Arya Farahmand is a Neurologist in Nashua, New Hampshire. Dr. Farahmand and is rated as an Advanced provider by MediFind in the treatment of Aicardi Syndrome. His top areas of expertise are Seizures, Memory Loss, Landau-Kleffner Syndrome, and Epilepsy with Myoclonic-Atonic Seizures. Dr. Farahmand is currently accepting new patients.

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    Neuroradiology | Radiology | Neurology
    Neuroradiology | Radiology | Neurology

    Mskcc Radiology Group

    1275 York Ave, 
    New York, NY 
     (185.9 mi)
    Experience:
    26+ years
    Languages Spoken:
    English

    Robert Young is a Neuroradiologist and a Radiologist in New York, New York. Dr. Young has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Aicardi Syndrome. His top areas of expertise are Brain Tumor, Astrocytoma, Posterior Fossa Tumor, and Glioma.

    Mount Sinai Hospital

    ON, CA 
     (184.7 mi)

    Tim Van Mieghem practices in Canada. Van Mieghem and is rated as an Experienced expert by MediFind in the treatment of Aicardi Syndrome. His top areas of expertise are Congenital Diaphragmatic Hernia, Diaphragmatic Hernia, Hernia, Endoscopy, and Kidney Transplant.

    The Heart Center Of The Oranges

    135 Bloomfield Ave, Suite B, 
    Bloomfield, NJ 
     (195.1 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ruth Clark-Brown is a Neurologist in Bloomfield, New Jersey. Dr. Clark-Brown and is rated as an Experienced provider by MediFind in the treatment of Aicardi Syndrome. Her top areas of expertise are Headache, Epilepsy, Memory Loss, and Seizures. Dr. Clark-Brown is currently accepting new patients.

    Showing 1-6 of 6

    Last Updated: 03/06/2025

    What is the definition of Aicardi Syndrome?

    Aicardi syndrome is a disorder that occurs almost exclusively in females. It is characterized by three main features that occur together in most affected individuals. People with Aicardi syndrome have absent or underdeveloped tissue connecting the left and right halves of the brain (agenesis or dysgenesis of the corpus callosum). They have seizures beginning in infancy (infantile spasms), which tend to progress to recurrent seizures (epilepsy) that can be difficult to treat. Affected individuals also have chorioretinal lacunae, which are defects in the light-sensitive tissue at the back of the eye (retina).

    When should I see an Aicardi Syndrome doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Aicardi Syndrome doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Aicardi Syndrome doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Aicardi Syndrome doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Aicardi Syndrome doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Aicardi Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Aicardi Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Aicardi Syndrome doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Aicardi Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Aicardi Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Aicardi Syndrome doctors near Boston, MA?

    Look for the filter feature on the left side of the Aicardi Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Aicardi Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Aicardi Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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