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    Last Updated: 03/06/2025

     
     
     
     
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    MediFind found 12 doctor with experience in Chromosome 13q Deletion. Of these, 9 are Experienced and 3 are Advanced.

    Location:
    12 providers found
    Advanced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Advanced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
     (570.8 mi)
    Languages Spoken:
    English

    Robert Hopkin is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Hopkin and is rated as an Advanced provider by MediFind in the treatment of Chromosome 13q Deletion. His top areas of expertise are Fabry Disease, Micrognathia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, and Multiple Sulfatase Deficiency.

    Advanced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Advanced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics

    University Of Penn - Medical Group

    3400 Civic Ctr Blvd 2, Medical Genetics Icm Program, 
    Philadelphia, PA 
     (1049.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Staci Kallish is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Kallish and is rated as an Advanced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Gaucher Disease Type 1, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Fabry Disease.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Advanced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Advanced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    112 Colchester Ave, Vermont Regional Genetics Center, 
    Burlington, VT 
     (1258.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Leah Burke is a Medical Genetics specialist and a Pediatrics provider in Burlington, Vermont. Dr. Burke and is rated as an Advanced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Citrullinemia, Chromosome 13q Deletion, Vascular Ehlers-Danlos Syndrome (VEDS), and Brittle Cornea Syndrome. Dr. Burke is currently accepting new patients.

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    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    200 Hawkins Dr, 
    Iowa City, IA 
     (500.9 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Safina is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Safina and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Split Hand Foot Malformation, AEC Syndrome, Nicolaides-Baraitser Syndrome, and Aase Syndrome. Dr. Safina is currently accepting new patients.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics

    Fairview Express Care

    2450 Riverside Ave, 
    Minneapolis, MN 
     (722.7 mi)
    Experience:
    16+ years
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Anjali Aggarwal is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Aggarwal has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Chromosome 13q Deletion, Williams Syndrome, Hardikar Syndrome, and 2q37 Deletion Syndrome. Dr. Aggarwal is currently accepting new patients.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Cardiology
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Cardiology

    University Physicians Incorporated

    12605 E 16th Ave, Uchealth Anschutz Medical Campus, 
    Aurora, CO 
     (742.4 mi)
    Languages Spoken:
    English

    Matthew Taylor is a Medical Genetics specialist and a Cardiologist in Aurora, Colorado. Dr. Taylor and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. His top areas of expertise are Danon Disease, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, and Heart Transplant.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics | Adolescent Medicine
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics | Adolescent Medicine

    Sanford Medical Center Fargo

    1220 Sheyenne St, 
    West Fargo, ND 
     (876.9 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Kari Casas is a Medical Genetics specialist and a Pediatrics provider in West Fargo, North Dakota. Dr. Casas and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, Increased Head Circumference, and Chromosome 13q Deletion. Dr. Casas is currently accepting new patients.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Bronx, NY 
     (1134.5 mi)
    Languages Spoken:
    English

    Robert Marion is a Medical Genetics specialist and a Pediatrics provider in Bronx, New York. Dr. Marion and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. His top areas of expertise are Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, and Williams Syndrome.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Cardiology | Pediatrics
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Cardiology | Pediatrics

    Mainehealth

    1577 Congress St, 
    Portland, ME 
     (1367.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Wendy Smith is a Medical Genetics specialist and a Cardiologist in Portland, Maine. Dr. Smith and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Phenylketonuria (PKU), Galactose Epimerase Deficiency, Galactosemia, and Galactokinase Deficiency.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Pediatrics
    8700 Beverly Blvd., 
    Los Angeles, CA 
     (1442.1 mi)
    Languages Spoken:
    English

    John Graham is a Medical Genetics specialist and a Pediatrics provider in Los Angeles, California. Dr. Graham and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. His top areas of expertise are FG Syndrome, 1p36 Deletion Syndrome, Bosma Arhinia Microphthalmia Syndrome, and Increased Head Circumference.

    Experienced in Chromosome 13q Deletion
    Endocrinology | Medical Genetics
    Experienced in Chromosome 13q Deletion
    Endocrinology | Medical Genetics

    Stanford Health Care

    300 Pasteur Dr, 
    Stanford, CA 
     (1634.3 mi)
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Annes is an Endocrinologist and a Medical Genetics provider in Stanford, California. Dr. Annes has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. His top areas of expertise are Pheochromocytoma, Glomus Jugulare Tumor, Glomus Tympanum Tumor, and Multiple Endocrine Neoplasia Type 1. Dr. Annes is currently accepting new patients.

    Experienced in Chromosome 13q Deletion
    Medical Genetics | Neurology
    Experienced in Chromosome 13q Deletion
    Medical Genetics | Neurology

    The Association Of University Physicians

    1959 Ne Pacific St, 
    Seattle, WA 
     (1757.9 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Fuki Hisama is a Medical Genetics specialist and a Neurologist in Seattle, Washington. Dr. Hisama and is rated as an Experienced provider by MediFind in the treatment of Chromosome 13q Deletion. Her top areas of expertise are Werner Syndrome, Cockayne Syndrome Type 1, Cockayne Syndrome, and Cockayne Syndrome Type 2.

    Showing 1-12 of 12

    Last Updated: 03/06/2025

    What is the definition of Chromosome 13q Deletion?

    Chromosome 13q deletion is a chromosome abnormality that occurs when there is a missing (deleted) copy of genetic material on the long arm (q) of chromosome 13. The severity of the condition and the signs and symptoms depend on the size and location of the deletion and which genes are involved. Features that often occur in people with Chromosome 13q deletion include developmental delay, intellectual disability, behavioral problems and distinctive facial features. Chromosome testing of both parents can provide more information on whether or not the deletion was inherited. In most cases, parents do not have any chromosomal anomaly. However, sometimes one parent is found to have a balanced translocation, where a piece of a chromosome has broken off and attached to another one with no gain or loss of genetic material. The balanced translocation normally does not cause any signs or symptoms, but it increases the risk for having an affected child with a chromosomal anomaly like a deletion.

    When should I see a Chromosome 13q Deletion doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Chromosome 13q Deletion doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Chromosome 13q Deletion doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Chromosome 13q Deletion doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Chromosome 13q Deletion doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Chromosome 13q Deletion doctor search results page. 

    Why is it important to get a second opinion from a different Chromosome 13q Deletion doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Chromosome 13q Deletion doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Chromosome 13q Deletion doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Chromosome 13q Deletion doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Chromosome 13q Deletion doctors near me?

    Look for the filter feature on the left side of the Chromosome 13q Deletion doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Chromosome 13q Deletion doctor that offers video calls?

    Look for the filter feature on the left-side of the Chromosome 13q Deletion doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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