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    Last Updated: 03/06/2025

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    MediFind found 12 doctor with experience in Congenital Muscular Dystrophy Type 1A. Of these, 9 are Experienced and 3 are Advanced.

    Location:
    Hurricane, WV, US
    12 providers found

    University Physicians And Surgeons, Inc

    1600 Medical Ctr Dr, Suite B500, 
    Huntington, WV 
     (22.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Paul Ferguson is a Neurologist in Huntington, West Virginia. Dr. Ferguson and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Essential Tremor, Migraine, Multiple Sclerosis (MS), and Parkinson's Disease. Dr. Ferguson is currently accepting new patients.

    Family Medicine
    Family Medicine

    Wilmington Physicians Group LLC

    630 W Main St, Suite 207, 
    Wilmington, OH 
     (120.2 mi)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Rodel Cacas is a Family Medicine provider in Wilmington, Ohio. Dr. Cacas and is rated as an Advanced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Collagen VI-Related Myopathy, Centronuclear Myopathy, Central Core Disease, and Nemaline Myopathy. Dr. Cacas is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Family Medicine
    Family Medicine

    Pendleton Community Care Inc

    15 Mott St, 
    Harman, WV 
     (138.8 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Carmen Rexrode is a Family Medicine provider in Harman, West Virginia. Dr. Rexrode and is rated as an Advanced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. Her top areas of expertise are Maturity Onset Diabetes of the Young, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Rexrode is currently accepting new patients.

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    University Of Virginia Physicians Group

    1215 Lee St, 
    Charlottesville, VA 
     (193.1 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sarah Jones is a Neurologist in Charlottesville, Virginia. Dr. Jones and is rated as an Advanced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. Her top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Migraine, and Sensorimotor Polyneuropathy. Dr. Jones is currently accepting new patients.

    Osu Physical Medicine And Rehabilitation, LLC

    480 Medical Ctr Dr, 
    Columbus, OH 
     (120.4 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Kim is a Physiatrist in Columbus, Ohio. Dr. Kim and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Paraplegia, and Hemiplegia. Dr. Kim is currently accepting new patients.

    Osu Neuroscience Center, LLC

    2050 Kenny Rd, 
    Columbus, OH 
     (121.2 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Burford is a Neurologist in Columbus, Ohio. Dr. Burford and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Peripheral Neuropathy, Primary Lateral Sclerosis, and Spinal and Bulbar Muscular Atrophy. Dr. Burford is currently accepting new patients.

    Lexington, KY 
     (136.9 mi)
    Languages Spoken:
    English

    Stephen Ryan is a Neurologist in Lexington, Kentucky. Dr. Ryan and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Myasthenia Gravis, and Peripheral Neuropathy.

    University Of Cincinnati Physicians Company LLC

    2123 Auburn Ave, 
    Cincinnati, OH 
     (142.2 mi)
    Languages Spoken:
    English, Arabic, Arabic - Jordanian
    Accepting New Patients

    Hani Kushlaf is a Neurologist in Cincinnati, Ohio. Dr. Kushlaf and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Myasthenia Gravis, Pompe Disease, Inclusion Body Myositis, Charcot-Marie-Tooth Disease, and Thymectomy. Dr. Kushlaf is currently accepting new patients.

    Wake Forest University Health Sciences

    500 Shepherd St, 
    Winston Salem, NC 
     (187.7 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Cartwright is a Neurologist in Winston Salem, North Carolina. Dr. Cartwright and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Mononeuritis Multiplex, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Cramp-Fasciculation Syndrome. Dr. Cartwright is currently accepting new patients.

    University Of Virginia Physicians Group

    1 Hospital Dr, Fl 2, 
    Charlottesville, VA 
     (193.0 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lawrence Phillips is a Neurologist in Charlottesville, Virginia. Dr. Phillips and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Myasthenia Gravis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Phillips is currently accepting new patients.

    University Of Louisville Physicians Inc

    3920 Dutchmans Lane, Suite 302, 
    Louisville, KY 
     (196.5 mi)
    Languages Spoken:
    English
    Accepting New Patients

    John Gormley is a Physiatrist in Louisville, Kentucky. Dr. Gormley and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Stroke, Cerebral Palsy, Muscle Spasms, Gastrostomy, and Bone Marrow Aspiration. Dr. Gormley is currently accepting new patients.

    3900 Kresge Way, Suite 56, 
    Louisville, KY 
     (196.6 mi)
    Languages Spoken:
    English

    Gregory Pittman is a Neurologist in Louisville, Kentucky. Dr. Pittman and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Andermann Syndrome, Charcot-Marie-Tooth Disease, Sensorimotor Polyneuropathy, and Tomaculous Neuropathy.

    Showing 1-12 of 12

    Last Updated: 03/06/2025

    What is the definition of Congenital Muscular Dystrophy Type 1A?

    Congenital muscular dystrophy type 1A (MDC1A) belongs to a group of neuromuscular disorders that beings at birth or infancy and is characterized mainly by hypotonia, muscle weakness and muscle wasting. Other signs and symptoms include rigidity of the spine; scoliosis; and delayed, limited motor development, with most individuals needing assistive devices for mobility. Respiratory problems, feeding disorders and seizures may also occur. With time, affected individuals may develop an elongated face and ophthalmoplegia disorders (paralysis or weakness in muscles of the eye). Intellectual development is typically normal. It is caused by genetic changes in the LAMA2 gene and is inherited in an autosomal recessive manner.

    When should I see a Congenital Muscular Dystrophy Type 1A doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Muscular Dystrophy Type 1A doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Congenital Muscular Dystrophy Type 1A doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Muscular Dystrophy Type 1A doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Muscular Dystrophy Type 1A doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Muscular Dystrophy Type 1A doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Muscular Dystrophy Type 1A doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Muscular Dystrophy Type 1A doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Muscular Dystrophy Type 1A doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Muscular Dystrophy Type 1A doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Muscular Dystrophy Type 1A doctors near me?

    Look for the filter feature on the left side of the Congenital Muscular Dystrophy Type 1A doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Muscular Dystrophy Type 1A doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Muscular Dystrophy Type 1A doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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