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    Last Updated: 03/06/2025

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    MediFind found 8 doctor with experience in Congenital Muscular Dystrophy Type 1A near Washington, US. Of these, 6 are Experienced and 2 are Advanced.

    Location:
    Washington, US
    8 providers found

    The Association Of University Physicians

    1701 Columbia Rd, 
    Seattle, WA 
    Languages Spoken:
    English, Filipino, Japanese, Spanish
    Accepting New Patients
    Offers Telehealth

    Michael Weiss is a Neurologist in Seattle, Washington. Dr. Weiss and is rated as an Advanced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Gallbladder Removal, and Endoscopy. Dr. Weiss is currently accepting new patients.

    Family Medicine
    Family Medicine

    Orchards Medical Office

    7101 NE 137th Avenue, 
    Vancouver, WA 
    Languages Spoken:
    English
    Accepting New Patients

    Jill Williams is a Family Medicine provider in Vancouver, Washington. Dr. Williams and is rated as an Advanced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. Her top areas of expertise are Tubular Aggregate Myopathy, Nemaline Myopathy, Congenital Fiber-Type Disproportion, and Central Core Disease. Dr. Williams is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?

    Public Hospital Dist No 1 Skagit

    1415 E Kincaid St, 
    Mount Vernon, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Peter Struck is a Neurologist in Mount Vernon, Washington. Dr. Struck and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Partial Familial Epilepsy, Partial Seizure, Drug Induced Dyskinesia, and Essential Tremor. Dr. Struck is currently accepting new patients.

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    The Association Of University Physicians

    1959 Ne Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English, Filipino, Russian, Spanish, Ukrainian
    Accepting New Patients
    Offers Telehealth

    Barbara Distad is a Neurologist in Seattle, Washington. Dr. Distad and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. Her top areas of expertise are Peripheral Neuropathy, Myasthenia Gravis, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA). Dr. Distad is currently accepting new patients.

    Family Medicine | General Practice
    Family Medicine | General Practice
    830 Ball St, 
    Sedro-woolley, WA 
    Languages Spoken:
    English, Punjabi, Spanish, Urdu
    Accepting New Patients
    Offers Telehealth

    Denis Harlock is a Family Medicine specialist and a General Practice provider in Sedro-woolley, Washington. Dr. Harlock and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are Tubular Aggregate Myopathy, Nemaline Myopathy, Rigid Spine Syndrome, and X-Linked Myotubular Myopathy. Dr. Harlock is currently accepting new patients.

    Physiatry | Neurology
    Physiatry | Neurology
    1959 Ne Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English

    Martin Childers is a Physiatrist and a Neurologist in Seattle, Washington. Dr. Childers and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. His top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Limb-Girdle Muscular Dystrophy.

    Columbia Basin Health Association

    1515 E Columbia St, 
    Othello, WA 
    Languages Spoken:
    English, Castilian, Filipino, Latvian, Russian, Spanish, Thai
    Accepting New Patients
    Offers Telehealth

    Catherine Dinglasan is a Family Medicine provider in Othello, Washington. Dr. Dinglasan and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. Her top areas of expertise are Type 2 Diabetes (T2D), Diabetic Nephropathy, Tracheitis, and Collagen VI-Related Myopathy. Dr. Dinglasan is currently accepting new patients.

    The Association Of University Physicians

    1959 Ne Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Suman Jayadev is a Neurologist in Seattle, Washington. Dr. Jayadev and is rated as an Experienced provider by MediFind in the treatment of Congenital Muscular Dystrophy Type 1A. Her top areas of expertise are Huntington Disease, Dementia, Alzheimer's Disease, and Mcleod Neuroacanthocytosis Syndrome. Dr. Jayadev is currently accepting new patients.

    Showing 1-8 of 8

    Last Updated: 03/06/2025

    What is the definition of Congenital Muscular Dystrophy Type 1A?

    Congenital muscular dystrophy type 1A (MDC1A) belongs to a group of neuromuscular disorders that beings at birth or infancy and is characterized mainly by hypotonia, muscle weakness and muscle wasting. Other signs and symptoms include rigidity of the spine; scoliosis; and delayed, limited motor development, with most individuals needing assistive devices for mobility. Respiratory problems, feeding disorders and seizures may also occur. With time, affected individuals may develop an elongated face and ophthalmoplegia disorders (paralysis or weakness in muscles of the eye). Intellectual development is typically normal. It is caused by genetic changes in the LAMA2 gene and is inherited in an autosomal recessive manner.

    When should I see a Congenital Muscular Dystrophy Type 1A doctor in Washington, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Muscular Dystrophy Type 1A doctor in Washington, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Congenital Muscular Dystrophy Type 1A doctors in Washington, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Muscular Dystrophy Type 1A doctors in Washington, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Muscular Dystrophy Type 1A doctor in Washington, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Muscular Dystrophy Type 1A doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Muscular Dystrophy Type 1A doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Muscular Dystrophy Type 1A doctor in Washington, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Muscular Dystrophy Type 1A doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Muscular Dystrophy Type 1A doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Muscular Dystrophy Type 1A doctors in Washington, US?

    Look for the filter feature on the left side of the Congenital Muscular Dystrophy Type 1A doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Muscular Dystrophy Type 1A doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Muscular Dystrophy Type 1A doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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