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Learn About Ebstein's Anomaly

What is the definition of Ebstein's Anomaly?
Ebstein's anomaly is a rare heart defect in which parts of the tricuspid valve (which separates the right ventricle from the right atrium) are abnormal. The abnormality causes the tricuspid valve to leak blood backwards into the right atrium. The backup of blood flow can lead to heart swelling and fluid buildup in the lungs or liver. Sometimes, not enough blood gets out of the heart into the lungs and the person may appear blue. Symptoms range from mild to very severe.
What are the alternative names for Ebstein's Anomaly?
  • Ebstein's anomaly
  • Ebstein anomaly
  • Ebstein's malformation
Who are the top Ebstein's Anomaly Local Doctors?
Advanced in Ebstein's Anomaly
Pediatric Cardiology | Pediatrics
Advanced in Ebstein's Anomaly
Pediatric Cardiology | Pediatrics

Unmc Physicians

987400 Nebraska Medical Ctr, Unmc Physicians Nebraska Medical Center, 
Omaha, NE 
 (87.6 mi)
Languages Spoken:
English, American Sign Language, Sign Language
Accepting New Patients

Jonathan Cramer is a Pediatric Cardiologist and a Pediatrics provider in Omaha, Nebraska. Dr. Cramer and is rated as an Advanced provider by MediFind in the treatment of Ebstein's Anomaly. His top areas of expertise are Ebstein's Anomaly, Eisenmenger Syndrome, Congenital Heart Disease (CHD), Williams Syndrome, and Heart Transplant. Dr. Cramer is currently accepting new patients.

Experienced in Ebstein's Anomaly
Experienced in Ebstein's Anomaly

Mary Greeley Medical Center

1111 Duff Ave, 
Ames, IA 
 (51.6 mi)
Experience:
16+ years
Languages Spoken:
English
Accepting New Patients

Jason Rasmussen is a Cardiologist in Ames, Iowa. Dr. Rasmussen has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Ebstein's Anomaly. His top areas of expertise are Adenosine Deaminase 2 Deficiency, Acute Coronary Syndrome, Coronary Heart Disease, and Arrhythmogenic Right Ventricular Cardiomyopathy. Dr. Rasmussen is currently accepting new patients.

 
 
 
 
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Experienced in Ebstein's Anomaly
Family Medicine
Experienced in Ebstein's Anomaly
Family Medicine

Montgomery County Memorial Hospital

1400 Senate Ave, 
Red Oak, IA 
 (57.1 mi)
Languages Spoken:
English
Accepting New Patients

William Butz is a Family Medicine provider in Red Oak, Iowa. Dr. Butz and is rated as an Experienced provider by MediFind in the treatment of Ebstein's Anomaly. His top areas of expertise are Enlarged Prostate (BPH), Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Butz is currently accepting new patients.

What are the latest Ebstein's Anomaly Clinical Trials?
Role of Sacubitril-Valsartan for Right Ventricular Reverse Remodeling in Adults with Tetralogy of Fallot and Ebstein's Anomaly: a Randomized Controlled Pilot Clinical Trial

Summary: The purpose of this study is to compare changes in RV structure and function, biomarkers, and patient reported outcomes between TOF patients randomized to an ARNI vs placebo.

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Fetal Ebstein Anomaly and Tricuspid Valve Dysplasia Registry

Summary: Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) are rare congenital tricuspid valve malformations that carry among the highest mortality of all congenital heart disease diagnosed in utero. Despite the high mortality associated with severe EA/TVD in the fetus, it has only been studied retrospectively. By prospectively enrolling a cohort across multiple centers, many questions may be answered...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center