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Learn About Familial Multiple Nevi Flammei

What is the definition of Familial Multiple Nevi Flammei?
Familial multiple nevi flammei is a rare, genetic capillary malformation disorder characterized by dark red to purple birthmarks which manifest as flat, sharply circumscribed cutaneous lesions, typically situated in the head and neck region, in various members of a single family. The lesions grow proportionally with the individual, change in color and often thicken with age.
What are the alternative names for Familial Multiple Nevi Flammei?
  • Nevi flammei, familial multiple
  • Port-wine stain familial multiple
Who are the top Familial Multiple Nevi Flammei Local Doctors?
Experienced in Familial Multiple Nevi Flammei
Experienced in Familial Multiple Nevi Flammei

Mary Hitchcock Memorial Hospital

100 Hitchcock Way, 
Manchester, NH 
 (1.8 mi)
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Mayra Beauchamp-Bruno is a Dermatologist in Manchester, New Hampshire. Dr. Beauchamp-Bruno and is rated as an Experienced provider by MediFind in the treatment of Familial Multiple Nevi Flammei. Her top areas of expertise are Actinic Keratosis, Graham-Little-Piccardi-Lassueur Syndrome, Warts, and Neurocutaneous Melanosis. Dr. Beauchamp-Bruno is currently accepting new patients.

Distinguished in Familial Multiple Nevi Flammei
Dermatology
Distinguished in Familial Multiple Nevi Flammei
Dermatology
243 Charles Street, 
Boston, MA 
 (47.9 mi)
Languages Spoken:
English

Oon Tan is a Dermatologist in Boston, Massachusetts. Dr. Tan and is rated as a Distinguished provider by MediFind in the treatment of Familial Multiple Nevi Flammei. Her top areas of expertise are Stork Bite, Familial Multiple Nevi Flammei, Vascular Birthmark, and Linear Hamartoma Syndrome.

 
 
 
 
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Distinguished in Familial Multiple Nevi Flammei
Dermatology
Distinguished in Familial Multiple Nevi Flammei
Dermatology
725 Albany St # 8b, 
Boston, MA 
 (49.6 mi)
Languages Spoken:
English
Accepting New Patients

Lisa Shen is a Dermatologist in Boston, Massachusetts. Dr. Shen and is rated as a Distinguished provider by MediFind in the treatment of Familial Multiple Nevi Flammei. Her top areas of expertise are Stork Bite, Familial Multiple Nevi Flammei, Pityriasis Alba, and Keloids. Dr. Shen is currently accepting new patients.

What are the latest Familial Multiple Nevi Flammei Clinical Trials?
A Multi-Center, Randomized, Double-Blind, Vehicle-Controlled, Sequential Group Comparison Study to Evaluate the Safety and Efficacy of Light Dose in Subjects with Port-wine Birthmarks Treated with Hemoporfin Photodynamic Therapy

Summary: This is a multi-center, randomized, double-blind, vehicle-controlled, and sequential group Phase 2 study. Eligible subjects aged 18 to 65 years old with PWB of face and/or neck area (except subjects for Stage One) will receive Hemoporfin PDT or vehicle PDT in 8-week cycles at fixed drug dose (5 mg/kg) and different light fluence.

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Tolerability of 532 nm Laser Treatment of Port Wine Stains

Summary: The goal of this study is to learn about treatment of port wine birthmarks treated with an FDA-approved 532 nm laser. The main questions it aims to answer are: * How well are the treatments tolerated? * Are there differences in tolerability of the treatment when a single high fluence laser pulse is used (the standard treatment) versus using multiple low fluence pulses? * Are there differences in r...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center