Refine your search results with filters

Specialty
Additional Specialty
Distance
    Gender
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 03/06/2025

    Looking for the best doctor for you?
    Start Here
     
     
     
     
    Learn about our expert tiers
    Learn More
    Learn about our doctor expertise tiers.
    If you have a rare or serious condition, you may want to seek advice from the best doctor you can find.
    In most cases, seeking advice from top-tier doctors may not be necessary.
    Elite
    • Global leaders in their field
    • Publish in medical journals frequently
    • Speak at conferences
    • Participate in clinical trials
    • Likely to work with cutting edge treatments
    • Likely to hold leadership positions in their organization
    Distinguished
    • Leaders in their field
    • Strong research portfolio
    • Likely to work with cutting edge treatments
    • Likely to be a leader in their field regionally
    Advanced
    • Excellent at diagnosing and treating conditions.
    • Treat many patients and have extensive experience in their field.
    • May not publish, speak at conferences, or participate in clinical trials.
    Experienced
    • Primarily treat patients rather than focus on research.
    • May be specialists or primary care physicians.
    • Have great experience in diagnosing and treating conditions.
    • Majority of doctors fall within this level of expertise.
    Find a second opinion
    Find now

    MediFind found 19 doctor with experience in Gangliosidosis. Of these, 15 are Experienced, 2 are Advanced, 1 are Distinguished and 1 are Elite.

    Location:
    Dulles, VA, US
    19 providers found
    Medical Genetics
    Medical Genetics
    111 Michigan Ave Nw, 
    Washington, DC 
     (23.5 mi)
    Languages Spoken:
    English

    Cynthia Tifft is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Tifft and is rated as an Elite provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

    Medical Genetics | Pediatrics
    Medical Genetics | Pediatrics
    Bethesda, MD 
     (18.8 mi)
    Languages Spoken:
    English

    David Adams is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Adams and is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, Hermansky-Pudlak Syndrome, and Oculocutaneous Albinism Type 2.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Medical Genetics | Pediatrics
    Medical Genetics | Pediatrics
    10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
    Bethesda, MD 
     (18.8 mi)
    Languages Spoken:
    English

    William Gahl is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gahl and is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Oculocutaneous Albinism Type 2, Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, and Hermansky-Pudlak Syndrome.

    Learn about our expert tiers
    Neurology
    Neurology
    187 Thomas Johnson Dr, Suite #3, 
    Frederick, MD 
     (33.0 mi)
    Languages Spoken:
    English

    Camilo Toro is a Neurologist in Frederick, Maryland. Dr. Toro and is rated as a Distinguished provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Chediak-Higashi Syndrome, Tay-Sachs Disease, Sandhoff Disease, and Gangliosidosis.

    Medical Genetics | Pediatrics
    Medical Genetics | Pediatrics
    10 Center Dr, 10-crc, Room 5-2571, 
    Bethesda, MD 
     (18.7 mi)
    Languages Spoken:
    English

    Forbes Porter is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Porter and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Smith-Lemli-Opitz Syndrome, Niemann-Pick Disease, Reticulohistiocytoma, and X-Linked Creatine Deficiency.

    10 Center Drive Nih, Building 10, Crc, Room 7-5680, 
    Bethesda, MD 
     (18.7 mi)
    Languages Spoken:
    English

    Tanya Lehky is a Neurologist in Bethesda, Maryland. Dr. Lehky and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Giant Axonal Neuropathy, Peripheral Neuropathy, Chediak-Higashi Syndrome, and Primary Lateral Sclerosis.

    35-2a1000 35 Convent Dr, Msc 3705, 
    Bethesda, MD 
     (18.8 mi)
    Languages Spoken:
    English

    Kenneth Fischbeck is a Neurologist in Bethesda, Maryland. Dr. Fischbeck and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Progressive Myoclonic Epilepsy.

    Johns Hopkins Community Physicians

    7315 Wisconson Ave, Suite 700, 
    Bethesda, MD 
     (19.2 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Omid Motabar is a Neurologist in Bethesda, Maryland. Dr. Motabar and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Stroke, Farber Lipogranulomatosis, Gaucher Disease, and Generalized Tonic-Clonic Seizure. Dr. Motabar is currently accepting new patients.

    Medical Genetics
    Medical Genetics
    111 Michigan Ave Nw, 
    Washington, DC 
     (23.5 mi)
    Languages Spoken:
    English

    Iskren Menkovic is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Menkovic and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are GM1 Gangliosidosis, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Gangliosidosis, and Brachydactyly Mononen Type.

    Pediatrics | Medical Genetics
    Pediatrics | Medical Genetics
    111 Michigan Ave Nw, 
    Washington, DC 
     (23.5 mi)
    Languages Spoken:
    English

    Christina Grant is a Pediatrics specialist and a Medical Genetics provider in Washington, Washington, D.c.. Dr. Grant and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Isovaleric Acidemia, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), and Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A).

    Medical Genetics | Pediatrics
    Medical Genetics | Pediatrics
    111 Michigan Ave Nw, 
    Washington, DC 
     (23.5 mi)
    Languages Spoken:
    English

    Dina Zand is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Zand and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, Cerebellar Hypoplasia, Lissencephaly 1, and Miller-Dieker Syndrome.

    11824 New Country Ln, 
    Columbia, MD 
     (33.8 mi)
    Languages Spoken:
    English

    Christopher Grunseich is a Neurologist in Columbia, Maryland. Dr. Grunseich and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    The Johns Hopkins Hospital 600 N Wolfe St, Path 509, Neurology, 
    Baltimore, MD 
     (51.4 mi)
    Languages Spoken:
    English

    Ami Mankodi is a Neurologist in Baltimore, Maryland. Dr. Mankodi and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Cytoplasmic Body Myopathy, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

    Johns Hopkins University

    600 N Wolf St, 
    Baltimore, MD 
     (51.4 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Nicholas Maragakis is a Neurologist in Baltimore, Maryland. Dr. Maragakis and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, 15q11.2 Microdeletion, and Spinal Muscular Atrophy (SMA). Dr. Maragakis is currently accepting new patients.

    Pediatrics | Pediatric Neurology | Neurology
    Pediatrics | Pediatric Neurology | Neurology
    600 N Wolfe St, Meyer 2-147, 
    Baltimore, MD 
     (51.4 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Adam Hartman is a Pediatrics specialist and a Pediatric Neurologist in Baltimore, Maryland. Dr. Hartman and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Seizures, Hemimegalencephaly, Epilepsy, and Increased Head Circumference. Dr. Hartman is currently accepting new patients.

    Ophthalmology | Neurology
    Ophthalmology | Neurology
    600 N Wolfe St, Woods Science Bldg, 461, 
    Baltimore, MD 
     (51.4 mi)
    Languages Spoken:
    English

    Thomas Bosley is an Ophthalmologist and a Neurologist in Baltimore, Maryland. Dr. Bosley and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Duane-Radial Ray Syndrome, Sulfite Oxidase Deficiency, Isolated Duane Retraction Syndrome, and Brown Syndrome.

    Medical Genetics
    Medical Genetics
    3401 Civic Center Blvd, Division Of Medical Genetics And Genomics, 
    Philadelphia, PA 
     (138.2 mi)
    Languages Spoken:
    English

    Xinying Hong is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Hong and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Krabbe Disease, Mucopolysaccharidoses (MPS), Cholesteryl Ester Storage Disease, and Mucolipidosis Type 4.

    Medical Genetics | Obstetrics and Gynecology
    Medical Genetics | Obstetrics and Gynecology
    300 Halket St, 
    Pittsburgh, PA 
     (167.9 mi)
    Languages Spoken:
    English

    Michael Bashford is a Medical Genetics specialist and an Obstetrics and Gynecologist in Pittsburgh, Pennsylvania. Dr. Bashford and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Tay-Sachs Disease and Gangliosidosis.

    Medical Genetics
    Medical Genetics
    300 Halket St Ste 1233, 
    Pittsburgh, PA 
     (167.9 mi)
    Languages Spoken:
    English

    Mahmoud Aarabi is a Medical Genetics provider in Pittsburgh, Pennsylvania. Dr. Aarabi and is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Mixed Gonadal Dysgenesis, Mosaicism, Trisomy 13, and Chromosome 13q Duplication.

    Showing 1-19 of 19

    Last Updated: 03/06/2025

    When should I see a Gangliosidosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Gangliosidosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Gangliosidosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Gangliosidosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Gangliosidosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Gangliosidosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Gangliosidosis doctors near me?

    Look for the filter feature on the left side of the Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy