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Last Updated: 03/06/2025
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1 clinical trials
Rare Glycogen Storage Diseases Natural History Study
Enrollment Status: Recruiting
Publish Date: January 28, 2025
Intervention Type: Other
Distance: 341.4 mi
Summary: The purpose of this study is to collect and study key medical data about several ultra-rare GSDs (Glycogen Storage Diseases) including, but not limited to, GSD types 0a, 0b, VII, X, XII, XIII, XV, PRKAG2 syndrome and Danon disease.
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Last Updated: 03/06/2025