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Last Updated: 03/06/2025
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1 clinical trials
Congenital Muscle Disease Patient and Proxy Reported Outcome Study
Enrollment Status: Recruiting
Publish Date: August 09, 2021
Distance: 1936.1 mi
Summary: The Congenital Muscle Disease Patient and Proxy Reported Outcome Study (CMDPROS) is a longitudinal 10 year study to identify and trend care parameters, adverse events in the congenital muscle diseases using the Congenital Muscle Disease International Registry (CMDIR) to acquire necessary data for adverse event calculations (intake survey and medical records curation). To support this study and bec...
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Last Updated: 03/06/2025