Learn About Kartagener Syndrome
Sharon Dell practices in Vancouver, Canada. Dell is rated as an Elite expert by MediFind in the treatment of Kartagener Syndrome. Their top areas of expertise are Ciliary Dyskinesia-Bronchiectasis, Drug Induced Dyskinesia, Situs Inversus, and Dextrocardia with Situs Inversus.
Michael Knowles is a Pulmonary Medicine provider in Chapel Hill, North Carolina. Dr. Knowles is rated as an Elite provider by MediFind in the treatment of Kartagener Syndrome. His top areas of expertise are Ciliary Dyskinesia-Bronchiectasis, Bronchiectasis, Cystic Fibrosis, Kartagener Syndrome, and Myringotomy.
Heymut Omran practices in Muenster, Germany. Omran is rated as an Elite expert by MediFind in the treatment of Kartagener Syndrome. Their top areas of expertise are Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Kartagener Syndrome, and Drug Induced Dyskinesia.
Summary: The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.
Summary: The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.
Published Date: May 10, 2022
Published By: Genetic and Rare Diseases Informnation Center