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Learn About Legius Syndrome

Condition 101 content is not available at this time, but we are continually updating the site. Please check back.

However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.

Who are the top Legius Syndrome Local Doctors?

Rex Hospital Inc

4420 Lake Boone Trl, 
Raleigh, NC 
 (4.5 mi)
Languages Spoken:
English, Hindi, Spanish, Tamil
Accepting New Patients

Sivakumar Jaikumar is a Neurosurgery provider in Raleigh, North Carolina. Dr. Jaikumar and is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Embryonal Tumor with Multilayered Rosettes, Awake Craniotomy, and Gastrostomy. Dr. Jaikumar is currently accepting new patients.

Anesthesiology | Pain Medicine
Anesthesiology | Pain Medicine

American Anesthesiology Of North Carolina PLLC

4420 Lake Boone Trl, 
Raleigh, NC 
 (4.5 mi)
Languages Spoken:
English, Hindi
Accepting New Patients

Sanjay Shah is an Anesthesiologist and a Pain Medicine provider in Raleigh, North Carolina. Dr. Shah and is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His top areas of expertise are Sciatica, Acute Pain, Gallbladder Disease, and Protein Deficiency. Dr. Shah is currently accepting new patients.

 
 
 
 
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Hematology Oncology | Pediatrics | Hematology
Hematology Oncology | Pediatrics | Hematology
2100 Erwin Rd, 
Durham, NC 
 (22.8 mi)
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Corinne Linardic is a Hematologist Oncology specialist and a Pediatrics provider in Durham, North Carolina. Dr. Linardic and is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her top areas of expertise are Rhabdomyosarcoma, Adult Soft Tissue Sarcoma, Costello Syndrome, and Legius Syndrome. Dr. Linardic is currently accepting new patients.

What are the latest Legius Syndrome Clinical Trials?
Acceptance and Commitment Therapy for Caregivers of Children With a RASopathy: An Internal Pilot Feasibility Study and Follow-up Phase III Randomized Controlled Trial

Background: RASopathies are a group of genetic diseases that affect a child s development. They cause physical, cognitive, and behavioral symptoms. Caring for a child with a RASopathy can be stressful. Acceptance and Commitment Therapy (ACT) is a therapy that helps people become more aware and accepting of difficult thoughts and feelings. ACT has been found to be helpful for parents with high parenting stress...

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Clinical, Genetic, and Epidemiologic Study of Children and Adults With RASopathies

Background: RASopathies are a group of conditions caused by a genetic change. People with a RASopathy may have developmental issues, cognitive disability, poor growth, and birth defects. They may also have an increased risk for developing cancer. Researchers want to learn more.