MediFind found 9261 doctor with experience in Neurofibromatosis Type 1 (NF1). Of these, 4665 are Experienced, 638 are Advanced, 137 are Distinguished and 41 are Elite.
Mass General Brigham Cancer Institute: Neuro-Oncology
Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.
Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.
David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Glioma.
Johns Hopkins Outpatient Center
Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.
University Of Utah Pediatric Genetic & Metabolism Clinic
David Viskochil is a Medical Genetics provider in Salt Lake City, Utah. Dr. Viskochil has been practicing medicine for over 41 years and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Dr. Viskochil is currently accepting new patients.
Dana-Farber Cancer Institute, Inc.
Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.
KU Leuven
Eric Legius practices in Leuven, Belgium. Mr. Legius is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Legius Syndrome, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and RASopathies.
Steven Rhodes is a Pediatric Hematologist Oncology provider in Indianapolis, Indiana. Dr. Rhodes is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Optic Glioma, and Malignant Peripheral Nerve Sheath Tumor.
University Of Texas Southwestern Medical Center At Dallas
Justin Jordan is a Neurologist in Dallas, Texas. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy.
Fairview Express Care
Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.
Bruce Korf is a Medical Genetics specialist and a Pediatrics provider in Birmingham, Alabama. Dr. Korf is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.
Childrens Hospital Los Angeles Medical Group Inc
Tena Rosser is a Pediatric Neurologist and a Pediatrics provider in Los Angeles, California. Dr. Rosser is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Memory Loss.
Children's Hospital Medical Center
Elizabeth Schorry is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Schorry is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brittle Cornea Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS).
Juha Peltonen practices in Turku, Finland. Peltonen is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Their top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Actinic Keratosis, and Cafe-Au-Lait Spots.
Pierre Wolkenstein practices in Creteil, France. Mr. Wolkenstein is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Scalded Skin Syndrome, Erythema Multiforme, and Kidney Transplant.
Sirkku Peltonen practices in Helsinki, Finland. Peltonen is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Their top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Darier Disease, and Cafe-Au-Lait Spots.
MD Anderson
John Slopis is a Pediatric Neurologist and a Pediatrics provider in Houston, Texas. Dr. Slopis is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Schwannomatosis.
Johannes Salamon practices in Bad Oldesloe, Germany. Mr. Salamon is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, and Angioplasty.
Washington University
Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.
Susan Huson practices in Manchester, United Kingdom. Ms. Huson is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Legius Syndrome.
Last Updated: 01/09/2026