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    Last Updated: 01/09/2026

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    MediFind found 125 doctor with experience in Neurofibromatosis Type 1 (NF1) near North Carolina, US. Of these, 32 are Experienced, 7 are Advanced and 1 are Distinguished.

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    125 providers found
      Amy L. Svenson
      Pediatric Cardiology
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Svenson is a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Svenson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, Congenital Heart Disease (CHD), and Ventricular Septal Defects. Dr. Svenson is currently accepting new patients.

      Andrew S. Bensky
      Pediatric Cardiology
      Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Experience:
      40+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Bensky is a Pediatric Cardiologist in Charlotte, North Carolina. His top areas of expertise are End-Stage Renal Disease (ESRD), Cardiac Diverticulum, X-Linked Cardiac Valvular Dysplasia, and Congenital Heart Disease (CHD). Dr. Bensky is currently accepting new patients.

      Chad T. Jacobsen
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Experience:
      29+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chad Jacobsen is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Jacobsen has been practicing medicine for over 29 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Medulloblastoma, Neurofibromatosis, and Embryonal Tumor with Multilayered Rosettes. Dr. Jacobsen is currently accepting new patients.

      Learn about our expert tiers
      Adeel Yousaf
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Atrium Health Levine Children's Neurology Concord

      100 Medical Park Drive, Suite 310, 
      Concord, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adeel Yousaf is a Neurologist in Concord, North Carolina. Dr. Yousaf is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Yousaf is currently accepting new patients.

      Amy Kelly
      Nurse Practitioner | Hematology | Oncology
      Nurse Practitioner | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Kelly is a Hematologist and an Oncologist in Charlotte, North Carolina. Ms. Kelly is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Medulloblastoma, Brain Tumor, Pediatric Low-Grade Glioma (pLGG), and Atypical Teratoid Rhabdoid Tumor (ATRT). Ms. Kelly is currently accepting new patients.

      David A. Gass
      Hematology | Oncology
      Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Gass is a Hematologist and an Oncologist in Charlotte, North Carolina. His top areas of expertise are Brain Tumor, Brain Stem Cancer, Agranulocytosis, and Glioma. Dr. Gass is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      101 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Robert Greenwood is a Neurologist in Chapel Hill, North Carolina. Dr. Greenwood is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome.

      Zachary E. Potter
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Kernodle Clinic Mebane

      101 Medical Park Dr, 
      Mebane, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Zachary Potter is a Neurologist in Mebane, North Carolina. Dr. Potter is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Generalized Tonic-Clonic Seizure, Shingles, Headache, and Neurofibromatosis. Dr. Potter is currently accepting new patients.

      David Enterline
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neuroradiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neuroradiology

      Duke Health Integrated Practice Inc

      2301 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      David Enterline is a Neuroradiologist in Durham, North Carolina. Dr. Enterline is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Stroke, Relapsing Multiple Sclerosis (RMS), Vertebroplasty, and Bone Graft.

      Munes Fares
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Cardiology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Munes Fares is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Fares is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Transposition of the Great Arteries, Truncus Arteriosus, Coronary Artery Aneurysm, and Ventricular Septal Defects. Dr. Fares is currently accepting new patients.

      Derek G. Southwell
      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Derek Southwell is a Neurosurgery provider in Durham, North Carolina. Dr. Southwell is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Seizures, Epilepsy, Absence Seizure, Deep Brain Stimulation, and Awake Craniotomy. Dr. Southwell is currently accepting new patients.

      Mays Dairi
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology | Pediatrics

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Mays Dairi is an Ophthalmologist and a Pediatrics provider in Durham, North Carolina. Dr. Dairi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Papilledema, Increased Intracranial Pressure, Optic Nerve Atrophy, Brown Syndrome, and Trabeculectomy.

      Dean Bonsall
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Ophthalmology

      WFU Eye Center

      Medical Center Blvd., 
      Winston Salem, NC 
      Experience:
      32+ years
      Languages Spoken:
      English

      Dean Bonsall is an Ophthalmologist in Winston Salem, North Carolina. Dr. Bonsall has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Papilledema, and Increased Intracranial Pressure.

      Racheal Tushabe
      Experienced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine
      Experienced in Neurofibromatosis Type 1 (NF1)
      Internal Medicine

      Duke Primary Care Sage Road Internal Medicine

      201 Sage Rd, 
      Chapel Hill, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Racheal Tushabe is a primary care provider, practicing in Internal Medicine in Chapel Hill, North Carolina. Dr. Tushabe is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Endocarditis, Renovascular Hypertension, Atherosclerosis, and Coronary Heart Disease. Dr. Tushabe is currently accepting new patients.

      Michelle Go
      Ophthalmology | Pediatrics
      Ophthalmology | Pediatrics

      Duke Eye Center Holly Springs

      401 Irving Pkwy, 
      Holly Springs, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Michelle Go is an Ophthalmologist and a Pediatrics provider in Holly Springs, North Carolina. Dr. Go is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Strabismus, Amblyopia, Ocular Hypertension (OHT), Trabeculectomy, and Vitrectomy.

      Dmitriy Niyazov
      Medical Genetics
      Medical Genetics

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Dmitriy Niyazov is a Medical Genetics provider in Durham, North Carolina. Dr. Niyazov is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Early Infantile Epileptic Encephalopathy, Macroglossia, Ehlers-Danlos Syndrome (EDS), and Microcephaly.

      Sara M. Elrefai
      Medical Genetics
      Medical Genetics

      Atrium Health Levine Cancer Institute (Genetic Counseling)

      1021 Morehead Medical Drive, Suite 2300, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sara Elrefai is a Medical Genetics provider in Charlotte, North Carolina. Dr. Elrefai is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, Li-Fraumeni Syndrome, and Cowden Syndrome. Dr. Elrefai is currently accepting new patients.

      Cardiology
      Cardiology

      UT MD Anderson Cancer Center

      210 Ashville Ave # 408, 
      Cary, NC 
      Languages Spoken:
      English

      Jean Durand is a Cardiologist in Cary, North Carolina. Dr. Durand is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Cardiomyopathy Due to Anthracyclines, Doxorubicin-Induced Cardiomyopathy, Cardiomyopathy, Muscle Invasive Bladder Cancer, and Percutaneous Coronary Intervention (PCI).

      Daniel Barboriak
      Neuroradiology
      Neuroradiology
      Duke University Medical Ctr, Box 3808, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Daniel Barboriak is a Neuroradiologist in Durham, North Carolina. Dr. Barboriak is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Gliomatosis Cerebri, Pediatric Low-Grade Glioma (pLGG), Stroke, and Relapsing Multiple Sclerosis (RMS).

      Anoop Patel
      Neurosurgery
      Neurosurgery

      Duke Cancer Center

      20 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Anoop Patel is a Neurosurgery provider in Durham, North Carolina. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Showing 1-20 of 125

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in North Carolina, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in North Carolina, US?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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