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    Last Updated: 03/06/2025

     
     
     
     
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    Learn about our doctor expertise tiers.
    If you have a rare or serious condition, you may want to seek advice from the best doctor you can find.
    In most cases, seeking advice from top-tier doctors may not be necessary.
    Elite
    • Global leaders in their field
    • Publish in medical journals frequently
    • Speak at conferences
    • Participate in clinical trials
    • Likely to work with cutting edge treatments
    • Likely to hold leadership positions in their organization
    Distinguished
    • Leaders in their field
    • Strong research portfolio
    • Likely to work with cutting edge treatments
    • Likely to be a leader in their field regionally
    Advanced
    • Excellent at diagnosing and treating conditions.
    • Treat many patients and have extensive experience in their field.
    • May not publish, speak at conferences, or participate in clinical trials.
    Experienced
    • Primarily treat patients rather than focus on research.
    • May be specialists or primary care physicians.
    • Have great experience in diagnosing and treating conditions.
    • Majority of doctors fall within this level of expertise.
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    MediFind found 96 doctor with experience in Neurofibromatosis Type 1 (NF1). Of these, 17 are Experienced, 2 are Advanced, 2 are Elite and 1 are Distinguished.

    Location:
    96 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    1 Childrens Pl, Div Neurology Pediatrics, 
    Saint Louis, MO 
     (17.9 mi)
    Languages Spoken:
    English
    Offers Telehealth

    David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Optic Glioma, and Glioma.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)

    Washington University

    1 Barnes Jew Hosp Plz, 
    Saint Louis, MO 
     (18.0 mi)
    Experience:
    16+ years
    Languages Spoken:
    English
    Offers Telehealth

    Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe has been practicing medicine for over 16 years and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Distinguished in Neurofibromatosis Type 1 (NF1)
    Distinguished in Neurofibromatosis Type 1 (NF1)

    Washington University

    4921 Parkview Pl, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English

    Brian Van Tine is an Oncologist in Saint Louis, Missouri. Dr. Van Tine and is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Adult Soft Tissue Sarcoma, Synovial Sarcoma, Liposarcoma, and Malignant Peripheral Nerve Sheath Tumor.

    Learn about our expert tiers
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology | Pediatrics
    1 Childrens Pl, Div Ped Hematology And Onc, 
    Saint Louis, MO 
     (17.9 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Nicole Brossier is a Pediatric Hematologist Oncology specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Brossier and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Optic Glioma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), and Ganglioglioma.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology | Pediatrics | Hematology
    Advanced in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology | Pediatrics | Hematology
    1 Childrens Pl, Div Ped Hematology And Onc, 
    Saint Louis, MO 
     (17.9 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joshua Rubin is a Pediatric Hematologist Oncology specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Rubin and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Tumor, Glioma, Gliomatosis Cerebri, and Glioblastoma. Dr. Rubin is currently accepting new patients.

    Roula Al-Dahhak
    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Memory Training Center

    456 N New Ballas Rd, Suite 266, 
    Creve Coeur, MO 
     (23.0 mi)
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Roula Al-Dahhak is a Neurologist in Creve Coeur, Missouri. Dr. Al-Dahhak and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy (SMA). Dr. Al-Dahhak is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)
    22 Professional Park Dr, 
    Maryville, IL 
     (11.5 mi)
    Languages Spoken:
    English

    Charles Connor is a Dermatologist in Maryville, Illinois. Dr. Connor and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Actinic Keratosis, Pityriasis Rubra Pilaris, Warts, and Seborrheic Keratosis.

    Washington University

    1225 Graham Rd, 
    Florissant, MO 
     (14.0 mi)
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jonathan Baker is a Radiologist in Florissant, Missouri. His top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Rhabdomyosarcoma Embryonal, Scoliosis, Osteolysis Syndrome Recessive, and Bone Marrow Aspiration.

    Radiology | Neuroradiology
    Radiology | Neuroradiology

    Indiana University Radiology Associates Inc

    4400 Lindell Blvd, 
    Saint Louis, MO 
     (17.4 mi)
    Languages Spoken:
    English

    Ritu Bordia is a Radiologist and a Neuroradiologist in Saint Louis, Missouri. Her top areas of expertise are Stroke, Aseptic and Alopecic Nodules of Scalp (AANS), Cerebral Arteriovenous Malformation, and Pleurisy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology | Ophthalmology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurology | Ophthalmology

    Washington University

    4488 Forest Park Ave, Suite 160, 
    Saint Louis, MO 
     (17.7 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Yunshuo Tang is a Neurologist and an Ophthalmologist in Saint Louis, Missouri. Dr. Tang and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Papilledema. Dr. Tang is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics | Neurology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Pediatrics | Neurology

    Washington University

    4455 Duncan Ave, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Judith Weisenberg is a Pediatric Neurologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Weisenberg and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Rett Syndrome, Partial Familial Epilepsy, Early Infantile Epileptic Encephalopathy, and Seizures. Dr. Weisenberg is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Oncology | Nephrology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Oncology | Nephrology

    Washington University

    4921 Parkview Pl, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English

    Milan Chheda is an Oncologist and a Nephrologist in Saint Louis, Missouri. Dr. Chheda and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor.

    Plastic Surgery
    Plastic Surgery

    Washington University

    4921 Parkview Pl, Suite G6th, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Ida Fox is a Plastic Surgeon in Saint Louis, Missouri. Dr. Fox and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Carpal Tunnel Syndrome, Ganglion Cyst, Rhizarthrosis, Dupuytren Contracture, and Fasciotomy.

    Nurse Practitioner
    Nurse Practitioner

    Washington University

    4921 Parkview Pl, Suite 5c, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Elvisa Kurtovic is a Nurse Practitioner in Saint Louis, Missouri. Kurtovic and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Koolen De Vries Syndrome, Rathke Cleft Cyst, Pediatric Low-Grade Glioma (pLGG), and Neurofibromatosis Type 1 (NF1).

    Neurosurgery
    Neurosurgery

    Washington University

    4921 Parkview Pl, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Albert Kim is a Neurosurgery provider in Saint Louis, Missouri. Dr. Kim and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pituitary Tumor, Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Awake Craniotomy, and Balloon Sinuplasty.

    Plastic Surgery
    Plastic Surgery

    Washington University

    4921 Parkview Pl, Suite G6th, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Thomas Tung is a Plastic Surgeon in Saint Louis, Missouri. Dr. Tung and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Breast Enlargement In Males, Erb's Palsy, Legius Syndrome, Intertrigo, and Nerve Decompression.

    Physician Assistant
    Physician Assistant

    Washington University

    4921 Parkview Pl, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English

    Padmini Prabhu is a Physician Assistant in Saint Louis, Missouri. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

    Washington University

    4921 Parkview Pl, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Tanner Johanns is an Oncologist in Saint Louis, Missouri. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor.

    Neurosurgery | Hand Surgery | Plastic Surgery
    Neurosurgery | Hand Surgery | Plastic Surgery

    Washington University

    4921 Parkview Pl, Suite G6th, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Susan Mackinnon is a Neurosurgery specialist and a Hand Surgeon in Saint Louis, Missouri. Her top areas of expertise are Radial Nerve Dysfunction, Mononeuritis Multiplex, Brachial Plexopathy, Nerve Decompression, and Rhizotomy.

    Neurosurgery
    Neurosurgery

    Washington University

    4921 Parkview Pl, 
    Saint Louis, MO 
     (17.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Zipfel is a Neurosurgery provider in Saint Louis, Missouri. His top areas of expertise are Subarachnoid Hemorrhage, Arteriovenous Malformation, Meningioma, Endovascular Embolization, and Thrombectomy.

    Showing 1-20 of 96

    Last Updated: 03/06/2025

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near me?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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