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    Last Updated: 03/06/2025

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    MediFind found 95 doctor with experience in Orofaciodigital Syndrome 1. Of these, 60 are Experienced, 34 are Advanced and 1 are Distinguished.

    Location:
    95 providers found
    Experienced in Orofaciodigital Syndrome 1
    Otolaryngology | Plastic Surgery
    Experienced in Orofaciodigital Syndrome 1
    Otolaryngology | Plastic Surgery

    Central Dupage Physician Group

    0 N025 Winfield Rd, 
    Winfield, IL 
     (522.3 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Patrick Simon is an Otolaryngologist and a Plastic Surgeon in Winfield, Illinois. Dr. Simon and is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Melanoma, Perichondritis, Nasal Septal Hematoma, and Low Nasal Bridge. Dr. Simon is currently accepting new patients.

    Experienced in Orofaciodigital Syndrome 1
    Pediatrics | Internal Medicine
    Experienced in Orofaciodigital Syndrome 1
    Pediatrics | Internal Medicine

    Central Dupage Physician Group

    1800 N Main St, 
    Wheaton, IL 
     (524.2 mi)
    Languages Spoken:
    English

    Sara Doss is a Pediatrics specialist and an Internal Medicine provider in Wheaton, Illinois. Dr. Doss and is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Pulmonary Edema, Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), and Breast Cancer.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Distinguished in Orofaciodigital Syndrome 1
    Internal Medicine
    Distinguished in Orofaciodigital Syndrome 1
    Internal Medicine

    Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

    330 Brookline Ave, 
    Boston, MA 
     (1249.8 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Hans Kim is an Internal Medicine provider in Boston, Massachusetts. Dr. Kim and is rated as a Distinguished provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Marden Walker Like Syndrome, Oral-Facial-Digital Syndrome, Kaufman Oculocerebrofacial Syndrome, and Apert Syndrome. Dr. Kim is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Orofaciodigital Syndrome 1
    Otolaryngology | Plastic Surgery
    Experienced in Orofaciodigital Syndrome 1
    Otolaryngology | Plastic Surgery

    Mid Michigan ENT

    1500 Abbot Road Ste 400, 
    East Lansing, MI 
     (681.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Ahmed Sufyan is an Otolaryngologist and a Plastic Surgeon in East Lansing, Michigan. Dr. Sufyan and is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Basal Cell Skin Cancer, Melanoma, Ear Cancer, and Nasal Septal Hematoma. Dr. Sufyan is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery

    Washington University

    1 Childrens Pl, Suite A, 
    Saint Louis, MO 
     (272.8 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Kamlesh Patel is a Plastic Surgeon in Saint Louis, Missouri. Dr. Patel and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Craniectomy, and Osteotomy.

    Advanced in Orofaciodigital Syndrome 1
    Family Medicine
    Advanced in Orofaciodigital Syndrome 1
    Family Medicine

    Cotton O'neil Clinic Revocable Trust

    901 Sw Garfield Ave, 
    Topeka, KS 
     (327.4 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Bryon Bigham is a Family Medicine provider in Topeka, Kansas. Dr. Bigham and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Urinary Tract Infection in Children, Coronary Heart Disease, Glucocorticoid-Remediable Aldosteronism, Hernia Surgery, and Endoscopy. Dr. Bigham is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Pediatrics | Internal Medicine
    Advanced in Orofaciodigital Syndrome 1
    Pediatrics | Internal Medicine
    1701 Oak Park Blvd, 
    Lake Charles, LA 
     (340.6 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Kenneth Leger is a Pediatrics specialist and an Internal Medicine provider in Lake Charles, Louisiana. Dr. Leger and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hallermann-Streiff Syndrome. Dr. Leger is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine
    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine

    Ochsner Clinic LLC

    10071 Gulf Hwy, 
    Lake Charles, LA 
     (351.2 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Mohammad Nawaz is an Internal Medicine provider in Lake Charles, Louisiana. Dr. Nawaz and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Nawaz is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Oral and Maxillofacial Surgery | Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Oral and Maxillofacial Surgery | Plastic Surgery
    3333 Burnet Ave, Ml 2020, 
    Cincinnati, OH 
     (518.7 mi)
    Languages Spoken:
    English

    Haithem Elhadi-Babiker is an Oral and Maxillofacial Surgeon and a Plastic Surgeon in Cincinnati, Ohio. Dr. Elhadi-Babiker and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Pfeiffer Syndrome, Orofaciodigital Syndrome 4, Pierre Robin Sequence, Femoral Facial Syndrome, and Osteotomy.

    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine
    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine

    Trihealth G LLC

    9070 Winton Rd, 
    Cincinnati, OH 
     (521.5 mi)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Michel Kourie is an Internal Medicine provider in Cincinnati, Ohio. Dr. Kourie and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Diabetic Neuropathy, Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, and Type 2 Diabetes (T2D). Dr. Kourie is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine
    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine

    The University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
     (531.3 mi)
    Languages Spoken:
    English

    Elbert Huang is an Internal Medicine provider in Chicago, Illinois. Dr. Huang and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Type 2 Diabetes (T2D), Low Blood Sugar, Cytochrome P450 Oxidoreductase Deficiency, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, and Heart Transplant.

    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery | Pediatrics
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery | Pediatrics

    The Board Of Trustees Of The University Of Illinois

    1855 W Taylor St, 
    Chicago, IL 
     (534.2 mi)
    Languages Spoken:
    English, Hindi
    Accepting New Patients
    Offers Telehealth

    Pravin-kumar Patel is a Plastic Surgeon and a Pediatrics provider in Chicago, Illinois. Dr. Patel and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Apert Syndrome, Acrocephalopolydactyly, Pfeiffer Syndrome, Saethre-Chotzen Syndrome, and Osteotomy. Dr. Patel is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Ophthalmology | Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Ophthalmology | Plastic Surgery

    The Medical College Of Wisconsin Inc

    Milwaukee, WI 
     (598.0 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Gerald Harris is an Ophthalmologist and a Plastic Surgeon in Milwaukee, Wisconsin. Dr. Harris and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Dacryoadenitis, Ptosis, Graves Disease, Eyelid Drooping, and Tissue Biopsy. Dr. Harris is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Family Medicine
    Advanced in Orofaciodigital Syndrome 1
    Family Medicine

    Galion Community Hospital

    955 Bucyrus Rd, 
    Galion, OH 
     (653.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Mark Wood is a Family Medicine provider in Galion, Ohio. Dr. Wood and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Anemia, Pneumonia, High Potassium Level, Low Potassium Level, and Cardiac Ablation. Dr. Wood is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery
    1500 E Medical Center Dr, 
    Ann Arbor, MI 
     (683.0 mi)
    Languages Spoken:
    English

    Steven Buchman is a Plastic Surgeon in Ann Arbor, Michigan. Dr. Buchman and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Saethre-Chotzen Syndrome, Orofaciodigital Syndrome 4, Acrocephalopolydactyly, and Orofaciodigital Syndrome Type 2.

    Advanced in Orofaciodigital Syndrome 1
    Family Medicine
    Advanced in Orofaciodigital Syndrome 1
    Family Medicine

    Ghassan A Atto MD PLLC

    14825 Southfield Rd, 
    Allen Park, MI 
     (701.6 mi)
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Ghassan Atto is a Family Medicine provider in Allen Park, Michigan. Dr. Atto and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Necrosis, Peptic Ulcer, Sepsis, Gastrostomy, and Endoscopy. Dr. Atto is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery | General Surgery
    Advanced in Orofaciodigital Syndrome 1
    Plastic Surgery | General Surgery

    Beaumont Medical Group- Specialty Services

    468 Cadieux Rd, Fl 2, 
    Grosse Pointe, MI 
     (718.3 mi)
    Languages Spoken:
    English, Thai
    Accepting New Patients

    Kongkrit Chaiyasate is a Plastic Surgeon and a General Surgeon in Grosse Pointe, Michigan. Dr. Chaiyasate and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Lymphedema, Primary Intestinal Lymphangiectasia, Meige Disease, Tissue Biopsy, and Mastectomy. Dr. Chaiyasate is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Family Medicine
    Advanced in Orofaciodigital Syndrome 1
    Family Medicine

    Unity Health Network LLC

    4465 Darrow Rd, 
    Stow, OH 
     (730.1 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joseph Chase is a Family Medicine provider in Stow, Ohio. Dr. Chase and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Orofaciodigital Syndrome 1, Carpenter Syndrome, Multiple Epiphyseal Dysplasia, and Otopalatodigital Syndrome Type 1. Dr. Chase is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Family Medicine
    Advanced in Orofaciodigital Syndrome 1
    Family Medicine

    Steward Medical Group Inc

    55 Hall Ave, 
    Hubbard, OH 
     (767.5 mi)
    Experience:
    14+ years
    Languages Spoken:
    English
    Accepting New Patients

    Roman Davidenko is a Family Medicine provider in Hubbard, Ohio. Dr. Davidenko has been practicing medicine for over 14 years and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Moebius Syndrome, Ascher Syndrome, Fraser Syndrome, Barber Say Syndrome, and Pacemaker Implantation. Dr. Davidenko is currently accepting new patients.

    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine
    Advanced in Orofaciodigital Syndrome 1
    Internal Medicine

    Marshall County Memorial Hospital

    415 9th St, 
    Britton, SD 
     (789.6 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Scott Purintun is an Internal Medicine provider in Britton, South Dakota. Dr. Purintun and is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Lung Metastases, Cytochrome P450 Oxidoreductase Deficiency, Deafness Craniofacial Syndrome, and Craniofacial-Deafness-Hand Syndrome. Dr. Purintun is currently accepting new patients.

    Showing 1-20 of 95

    Last Updated: 03/06/2025

    What is the definition of Orofaciodigital Syndrome 1?

    Orofaciodigital syndrome 1 (OFD1), also called orofaciodigital syndrome type 1, is a condition that affects the development of the oral cavity (the mouth and teeth), facial features, and digits (fingers and toes). This condition also causes polycystic kidney disease. Orofaciodigital syndrome 1 is caused by a change in a gene called OFD1 which appears to play an important role in the early development of many parts of the body including the brain, face, limbs, and kidneys. The syndrome is inherited in an X-linked dominant pattern. The diagnosis of OFD1 is sometimes made at birth, but it may be suspected only after polycystic kidney disease is found in later childhood or adulthood. OFD1 is the most common form of orofaciodigital syndrome and differs from the other types mainly by its association with polycystic kidney disease.

    When should I see an Orofaciodigital Syndrome 1 doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Orofaciodigital Syndrome 1 doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Orofaciodigital Syndrome 1 doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Orofaciodigital Syndrome 1 doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Orofaciodigital Syndrome 1 doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. 

    Why is it important to get a second opinion from a different Orofaciodigital Syndrome 1 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Orofaciodigital Syndrome 1 doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Orofaciodigital Syndrome 1 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Orofaciodigital Syndrome 1 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Orofaciodigital Syndrome 1 doctors near me?

    Look for the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Orofaciodigital Syndrome 1 doctor that offers video calls?

    Look for the filter feature on the left-side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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