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Last Updated: 03/06/2025
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1 clinical trials
GROWing Up With Rare GENEtic Syndromes ….When Children With Complex Genetic Syndromes Reach Adult Age
Enrollment Status: Recruiting
Publish Date: September 06, 2023
Intervention Type: Diagnostic test
Distance: 4535.6 mi
Summary: Introduction Rare complex syndromes Patients with complex genetic syndromes, by definition, have combined medical problems affecting multiple organ systems, and intellectual disability is often part of the syndrome. During childhood, patients with rare genetic syndromes receive multidisciplinary and specialized medical care; they usually receive medical care from 3-4 medical specialists. Increased...
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Last Updated: 03/06/2025