Protoporphyria Overview
Learn About Protoporphyria
Condition 101 content is not available at this time, but we are continually updating the site. Please check back.
However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Francesca Granata practices in Milan, Italy. Ms. Granata is rated as an Elite expert by MediFind in the treatment of Protoporphyria. Her top areas of expertise are Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.
Jasmin Barman-Aksozen practices in Zurich, Switzerland. Ms. Barman-Aksozen is rated as an Elite expert by MediFind in the treatment of Protoporphyria. Her top areas of expertise are Porphyria, Protoporphyria, Erythropoietic Protoporphyria, and Acute Hepatic Porphyria (AHP).
Gayle Ross practices in Parkville, Australia. Ms. Ross is rated as an Elite expert by MediFind in the treatment of Protoporphyria. Her top areas of expertise are Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Porphyria Cutanea Tarda.
Summary: To evaluate the long-term safety and tolerability of oral dersimelagon.
Summary: The goal of this clinical trial is to learn if bitopertin works and is safe to treat EPP or XLP in participants 12 years or older. The main questions it aims to answer are: * Whether bitopertin increases pain-free sunlight exposure after 6 months of treatment in participants with EPP or XLP. * How PPIX concentration levels change from before bitopertin treatment to after 6 months of treatment. Res...