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    Last Updated: 03/06/2025

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    MediFind found 27 doctor with experience in Tubular Aggregate Myopathy near New York, US. Of these, 19 are Experienced and 8 are Advanced.

    Location:
    New York, US
    27 providers found

    Albany Medical College

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Murnane is a Neurologist in Albany, New York. Dr. Murnane and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Andermann Syndrome, Tomaculous Neuropathy, Charcot-Marie-Tooth Disease, and Hereditary Sensory Neuropathy Type 1 (HSN1).

    Trustees Of Columbia University In The City Of New York

    51 W 51st St, Fl 3 Suite 360, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Michio Hirano is a Neurologist in New York, New York. Dr. Hirano and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Mitochondrial Neurogastrointestinal Encephalopathy Disease, MELAS Syndrome, Progressive External Ophthalmoplegia, and X-Linked Dominant Scapuloperoneal Myopathy.

    What does Elite, Distinguished, Advanced, Experienced mean?
    601 Elmwood Ave, 
    Rochester, NY 
    Experience:
    40+ years
    Languages Spoken:
    English

    Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil has been practicing medicine for over 40 years and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Dysferlinopathy.

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    Neurology Medical Service Group Llp

    4900 Broad Rd, 
    Syracuse, NY 
    Languages Spoken:
    English

    Deborah Bradshaw is a Neurologist in Syracuse, New York. Dr. Bradshaw and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Myasthenia Gravis, and Charcot-Marie-Tooth Disease.

    20 Hagen Dr., Suite 300, 
    Rochester, NY 
    Languages Spoken:
    English

    Anne Moss is a Neurologist in Rochester, New York. Dr. Moss and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are X-Linked Myotubular Myopathy, Benign Autosomal Dominant Myopathy, Tubular Aggregate Myopathy, and Nemaline Myopathy.

    Pediatric Neurology | Neurology
    Pediatric Neurology | Neurology
    710 W 168th St, 
    New York, NY 
    Languages Spoken:
    English

    Jahannaz Dastgir is a Pediatric Neurologist and a Neurologist in New York, New York. Dr. Dastgir and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Limb-Girdle Muscular Dystrophy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Albany Medical College

    43 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English

    Konstantin Timofeev is a Neurologist in Albany, New York. Dr. Timofeev and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Migraine, Memory Loss, Seizures, and Epilepsy.

    Montefiore Medical Center

    111 E 210th St, 
    Bronx, NY 
    Languages Spoken:
    English

    Michael Swerdlow is a Neurologist in Bronx, New York. Dr. Swerdlow and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myasthenia Gravis, Neuromyelitis Optica, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS).

    University Of Rochester Medical Center - School Of Medicine And Dentistry

    601 Elmwood Ave, Box CU 420669, 
    Rochester, NY 
    Languages Spoken:
    English

    Robert Griggs is a Neurologist in Rochester, NY. Dr. Griggs and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Familial Periodic Paralysis, and Hyperkalemic Periodic Paralysis.

    Trustees Of Columbia University In The City Of New York

    180 Fort Washington Ave, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Akinpelumi Beckley is a Physiatrist in New York, New York. Dr. Beckley and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Paraplegia, Syringomyelia, Syringobulbia, Chiari Malformation Type 2, and Gamma Knife Radiosurgery.

    Family Medicine
    Family Medicine
    102 Race Track Rd, Suite 1, 
    Ticonderoga, NY 
    Languages Spoken:
    English

    Glen Chapman is a Family Medicine provider in Ticonderoga, New York. Dr. Chapman and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Maturity Onset Diabetes of the Young, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

    Neurology Medical Service Group Llp

    750 E Adams St, 
    Syracuse, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Anuradha Duleep is a Neurologist in Syracuse, New York. Dr. Duleep and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Seizures, Peripheral Neuropathy, Stroke, Memory Loss, and Gastrostomy.

    University Physicians Of Brooklyn, Inc.

    450 Clarkson Ave, 
    Brooklyn, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Yaacov Anziska is a Neurologist in Brooklyn, New York. Dr. Anziska and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myasthenia Gravis, Necrotizing Myopathy (NM), Dysferlinopathy, and Paramyotonia Congenita.

    Physiatry And Rehabilitation Medicine PC

    201 Dates Dr, Suite 201, 
    Ithaca, NY 
    Languages Spoken:
    English

    Andrew Morpurgo is a Physiatrist in Ithaca, New York. Dr. Morpurgo and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Complex Regional Pain Syndrome, Phantom Limb Pain, Chronic Pain, and X-Linked Myotubular Myopathy.

    Internal Medicine
    Internal Medicine

    New York University

    111 Broadway, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Brian Feingold is an Internal Medicine provider in New York, New York. Dr. Feingold and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Ebstein's Anomaly, Pediatric Myocarditis, Cardiomyopathy, Heart Transplant, and Lung Transplant.

    Ellis Hospital

    1101 Nott St, 
    Schenecctady, NY 
    Languages Spoken:
    English

    Christopher Murphy is a Family Medicine provider in Schenecctady, New York. Dr. Murphy and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Chronic Obstructive Pulmonary Disease (COPD), Congenital Muscular Dystrophy Type 1A, Central Core Disease, and Congenital Fiber-Type Disproportion.

    Internal Medicine
    Internal Medicine

    Albany Medical College

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Josephine Lee is an Internal Medicine provider in Albany, New York. Dr. Lee and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are High Cholesterol, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Internal Medicine
    Internal Medicine
    507 Main St, 
    Johnson City, NY 
    Languages Spoken:
    English

    Marianne Soden is an Internal Medicine provider in Johnson City, New York. Dr. Soden and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Rhabdomyolysis, Low Potassium Level, Gitelman Syndrome, and Benign Autosomal Dominant Myopathy.

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Experience:
    36+ years
    Languages Spoken:
    English

    David Herrmann is a Neurologist in Rochester, New York. Dr. Herrmann has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Tomaculous Neuropathy, and Charcot-Marie-Tooth Disease.

    Pediatric Neurology | Neurology
    Pediatric Neurology | Neurology
    4425 Douglas Ave, 
    Bronx, NY 
    Languages Spoken:
    English

    Leslie Delfiner is a Pediatric Neurologist and a Neurologist in Bronx, New York. Dr. Delfiner and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Congenital Myasthenic Syndrome, Primary Lateral Sclerosis, Myasthenia Gravis, and Hypotonia.

    Showing 1-20 of 27

    Last Updated: 03/06/2025

    What is the definition of Tubular Aggregate Myopathy?

    Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

    When should I see a Tubular Aggregate Myopathy doctor in New York, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tubular Aggregate Myopathy doctor in New York, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tubular Aggregate Myopathy doctors in New York, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tubular Aggregate Myopathy doctors in New York, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tubular Aggregate Myopathy doctor in New York, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor in New York, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tubular Aggregate Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tubular Aggregate Myopathy doctors in New York, US?

    Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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