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    Last Updated: 03/06/2025

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    • Primarily treat patients rather than focus on research.
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    MediFind found 14 doctor with experience in Tubular Aggregate Myopathy. Of these, 11 are Experienced, 2 are Advanced and 1 are Distinguished.

    Location:
    Omaha, NE, US
    14 providers found

    Unmc Physicians

    Emile 42nd St, 
    Omaha, NE 
     (2.1 mi)
    Languages Spoken:
    English, American Sign Language, Sign Language, Thai
    Accepting New Patients

    Pariwat Thaisetthawatkul is a Neurologist in Omaha, Nebraska. Dr. Thaisetthawatkul and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Stiff Person Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Myasthenia Gravis. Dr. Thaisetthawatkul is currently accepting new patients.

    Unmc Physicians

    4242 Farnam St, 
    Omaha, NE 
     (2.3 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Hartman is a Neurologist in Omaha, Nebraska. Dr. Hartman and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Multiple Sclerosis (MS), Neuralgia, Relapsing Multiple Sclerosis (RMS), and Migraine.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Family Medicine
    Family Medicine

    Physicians Clinic Inc

    10060 Regency Cir, 
    Omaha, NE 
     (7.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Jeffrey Jenkins is a Family Medicine provider in Omaha, Nebraska. Dr. Jenkins and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Hypothyroidism, Obesity in Children, High Cholesterol, and Maturity Onset Diabetes of the Young. Dr. Jenkins is currently accepting new patients.

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    Pediatric Neurology | Neurology
    Pediatric Neurology | Neurology
    14080 Boys Town Hospital Rd, 
    Boys Town, NE 
     (10.4 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Isabella Herman is a Pediatric Neurologist and a Neurologist in Boys Town, Nebraska. Dr. Herman and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Microcephaly with Spastic Quadriplegia, Spasticity, Hereditary Sensory Neuropathy Type 1 (HSN1), and Achalasia Microcephaly Syndrome. Dr. Herman is currently accepting new patients.

    Family Medicine
    Family Medicine

    Saint Luke's Hospital Of Trenton

    400 N Fullerton St, Saint Lukes Mercer County Clinic, 
    Princeton, MO 
     (136.2 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Jessica Snyder is a Family Medicine provider in Princeton, Missouri. Dr. Snyder and is rated as a Distinguished provider by MediFind in the treatment of Tubular Aggregate Myopathy. Her top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy. Dr. Snyder is currently accepting new patients.

    Be Well MD PLLC

    5800 Hidcote Dr, Suite 103, 
    Lincoln, NE 
     (51.3 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Puente is a Neurologist in Lincoln, Nebraska. Dr. Puente and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Parkinson's Disease, and Epilepsy. Dr. Puente is currently accepting new patients.

    Cnos PC

    575 N Sioux Point Rd, 
    Dakota Dunes, SD 
     (91.4 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Jon Grudem is a Neurologist in Dakota Dunes, South Dakota. Dr. Grudem and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Drug Induced Dyskinesia, Peripheral Neuropathy, Excessive Daytime Sleepiness, and Generalized Tonic-Clonic Seizure. Dr. Grudem is currently accepting new patients.

    105 Far West Drive, Suite 201, 
    St Joseph, MO 
     (119.5 mi)
    Languages Spoken:
    English, Farsi, Hindi, Spanish, Telugu, Urdu
    Accepting New Patients

    Sreenadha Davuluri is a Neurologist in St Joseph, Missouri. Dr. Davuluri and is rated as an Advanced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Memory Loss, Progressive Myoclonic Epilepsy, Unverricht-Lundborg Syndrome, and Lafora Disease. Dr. Davuluri is currently accepting new patients.

    Central Iowa Hospital Corporation

    6000 University Ave, Suite 210, 
    West Des Moines, IA 
     (113.3 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mohammad Alsharabati is a Neurologist in West Des Moines, Iowa. Dr. Alsharabati and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Peripheral Neuropathy. Dr. Alsharabati is currently accepting new patients.

    Family Medicine
    Family Medicine

    Family Medical Center Of Hastings

    1021 W 14th St, 
    Hastings, NE 
     (136.2 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Schram is a Family Medicine provider in Hastings, Nebraska. Dr. Schram and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, Collagen VI-Related Myopathy, and Congenital Muscular Dystrophy Type 1A. Dr. Schram is currently accepting new patients.

    Internal Medicine
    Internal Medicine

    Sanford Medical Center

    4405 E 26th St, 
    Sioux Falls, SD 
     (161.5 mi)
    Languages Spoken:
    English
    Accepting New Patients

    David Nelson is an Internal Medicine provider in Sioux Falls, South Dakota. Dr. Nelson and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Sciatica. Dr. Nelson is currently accepting new patients.

    Kansas University Physicians Inc

    4000 Cambridge St, 
    Kansas City, KS 
     (167.4 mi)
    Languages Spoken:
    English, French, Greek, Spanish
    Accepting New Patients
    Offers Telehealth

    Constantine Farmakidis is a Neurologist in Kansas City, Kansas. Dr. Farmakidis and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Tomaculous Neuropathy, Sensorimotor Polyneuropathy, and Thymectomy. Dr. Farmakidis is currently accepting new patients.

    Kansas University Physicians Inc

    4000 Cambridge St, 
    Kansas City, KS 
     (167.4 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Varon is a Neurologist in Kansas City, Kansas. Dr. Varon and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Infantile Axonal Neuropathy, Congenital Insensitivity to Pain with Anhidrosis, Hereditary Sensory and Autonomic Neuropathy Type 2, and Migraine. Dr. Varon is currently accepting new patients.

    Family Medicine
    Family Medicine

    Mayo Clinic Health System-Fairmont

    800 Medical Ctr Dr, 
    Fairmont, MN 
     (183.3 mi)
    Languages Spoken:
    English, German
    Accepting New Patients

    Jeffery Green is a Family Medicine provider in Fairmont, Minnesota. Dr. Green and is rated as an Experienced provider by MediFind in the treatment of Tubular Aggregate Myopathy. His top areas of expertise are Lung Cancer, Maturity Onset Diabetes of the Young, Obesity in Children, and Hypothyroidism. Dr. Green is currently accepting new patients.

    Showing 1-14 of 14

    Last Updated: 03/06/2025

    What is the definition of Tubular Aggregate Myopathy?

    Tubular aggregate myopathy is a disorder that affects the skeletal muscles. The leg muscles are most often affected, but the arm muscles may also be involved. Symptoms include muscle pain, cramping, weakness or stiffness; and exercise-induced muscle fatigue. Affected individuals may have an unusual walking style (gait) or difficulty running, climbing stairs, or getting up from a squatting position. Some individuals develop contractures. This condition may be caused by genetic changes in the STIM1 or ORAI1 genes. It is usually inherited in an autosomal dominant manner, but autosomal recessive inheritance has also been reported.

    When should I see a Tubular Aggregate Myopathy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tubular Aggregate Myopathy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tubular Aggregate Myopathy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tubular Aggregate Myopathy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tubular Aggregate Myopathy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Tubular Aggregate Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tubular Aggregate Myopathy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tubular Aggregate Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tubular Aggregate Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tubular Aggregate Myopathy doctors near me?

    Look for the filter feature on the left side of the Tubular Aggregate Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tubular Aggregate Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Tubular Aggregate Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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