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    Last Updated: 03/06/2025

     
     
     
     
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    • Leaders in their field
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    • Excellent at diagnosing and treating conditions.
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    MediFind found 13 doctor with experience in Proteus-Like Syndrome. Of these, 8 are Experienced, 3 are Advanced and 2 are Elite.

    Location:
    13 providers found
    Elite in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Elite in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    49 Convent Dr Rm 4a56, 
    Bethesda, MD 
     (475.2 mi)
    Languages Spoken:
    English

    Leslie Biesecker is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Biesecker and is rated as an Elite provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, and Lenz Microphthalmia Syndrome.

    Elite in Proteus-Like Syndrome
    Endocrinology | Medical Genetics | Pediatrics
    Elite in Proteus-Like Syndrome
    Endocrinology | Medical Genetics | Pediatrics

    University Of Wisconsin Medical Foundation Inc

    1500 Highland Ave, 
    Madison, WI 
     (894.6 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Kim Keppler-Noreuil is an Endocrinologist and a Medical Genetics provider in Madison, Wisconsin. Dr. Keppler-Noreuil and is rated as an Elite provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, and Hemihyperplasia. Dr. Keppler-Noreuil is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Advanced in Proteus-Like Syndrome
    Medical Genetics
    Advanced in Proteus-Like Syndrome
    Medical Genetics
    3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Genetics, 
    Philadelphia, PA 
     (364.3 mi)
    Languages Spoken:
    English

    Jennifer Kalish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kalish and is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Beckwith-Wiedemann Syndrome, Macroglossia, Hemi 3 Syndrome, Hemihyperplasia, and Glossectomy.

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    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    6701 Fannin St, 
    Houston, TX 
     (1653.1 mi)
    Languages Spoken:
    English, Urdu
    Accepting New Patients

    Seema Lalani is a Medical Genetics specialist and a Pediatrics provider in Houston, Texas. Dr. Lalani and is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Hypotonia, VACTERL Association, GABA-Transaminase Deficiency, and 1p36 Deletion Syndrome. Dr. Lalani is currently accepting new patients.

    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    4650 W Sunset Blvd # Ms 43, 
    Los Angeles, CA 
     (2560.9 mi)
    Languages Spoken:
    English

    Matthew Deardorff is a Medical Genetics specialist and a Pediatrics provider in Los Angeles, California. Dr. Deardorff and is rated as an Advanced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Cornelia De Lange Syndrome, Coffin-Siris Syndrome, Mosaicism, and Beckwith-Wiedemann Syndrome.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    Westchester Medical Center Advanced Physician Services PC

    241 N Rd, 
    Poughkeepsie, NY 
     (225.3 mi)
    Languages Spoken:
    English

    David Kronn is a Medical Genetics specialist and a Pediatrics provider in Poughkeepsie, New York. Dr. Kronn and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Pompe Disease, Phenylketonuria (PKU), Krabbe Disease, and Maternal Hyperphenylalaninemia.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    90 Bergen St, Doc 5400, 
    Newark, NJ 
     (291.2 mi)
    Languages Spoken:
    English

    Beth Pletcher is a Medical Genetics specialist and a Pediatrics provider in Newark, New Jersey. Dr. Pletcher and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Dyggve-Melchior-Clausen Syndrome, Phenylketonuria (PKU), Multiple Synostoses Syndrome 1, and Gastrostomy.

    Experienced in Proteus-Like Syndrome
    Medical Genetics
    Experienced in Proteus-Like Syndrome
    Medical Genetics
    3620 Hamilton Walk, 415 Anatomy And Chemistry Bldg, 
    Philadelphia, PA 
     (364.3 mi)
    Languages Spoken:
    English

    Arupa Ganguly is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Ganguly and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Beckwith-Wiedemann Syndrome, Macroglossia, Mosaicism, and Chromosome 11 Uniparental Disomy.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
     (760.2 mi)
    Experience:
    46+ years
    Languages Spoken:
    English

    Howard Saal is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Saal has been practicing medicine for over 46 years and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Achondroplasia, Crouzon Syndrome, Acrofrontofacionasal Dysostosis Syndrome, and Treacher Collins Syndrome.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
     (760.2 mi)
    Languages Spoken:
    English

    Robert Hopkin is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Hopkin and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Fabry Disease, Micrognathia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, and Multiple Sulfatase Deficiency.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    225 E Chicago Ave # 59, 
    Chicago, IL 
     (826.7 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are RASopathies, Gaucher Disease, Gaucher Disease Type 1, and Neurofibromatosis.

    Experienced in Proteus-Like Syndrome
    Medical Genetics
    Experienced in Proteus-Like Syndrome
    Medical Genetics
    701 Mcmillian Way Nw, Suite A, 
    Huntsville, AL 
     (1045.2 mi)
    Languages Spoken:
    English
    Accepting New Patients

    David Bick is a Medical Genetics provider in Huntsville, Alabama. Dr. Bick and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. His top areas of expertise are Rommen Mueller Sybert Syndrome, Mosaic Trisomy 9, Acromicric Dysplasia, and Proteus-Like Syndrome. Dr. Bick is currently accepting new patients in some locations.

    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus-Like Syndrome
    Medical Genetics | Pediatrics

    University Of California San Francisco

    2330 Post St, 
    San Francisco, CA 
     (2643.9 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Hind Al Saif is a Medical Genetics specialist and a Pediatrics provider in San Francisco, California. Dr. Al Saif and is rated as an Experienced provider by MediFind in the treatment of Proteus-Like Syndrome. Her top areas of expertise are Oculocutaneous Albinism, Pompe Disease, Danon Disease, and Maple Syrup Urine Disease.

    Showing 1-13 of 13

    Last Updated: 03/06/2025

    What is the definition of Proteus-Like Syndrome?

    Proteus-like syndrome describes people who do not meet the diagnostic criteria for Proteus syndrome but who share many of the characteristic signs and symptoms associated with the condition. Affected people may experience some of the following features: overgrowth of the bones, skin, and other tissues; hamartomas; abnormalities of the skin, blood vessels (vascular tissue) and fat (adipose tissue); and distinctive facial features. Approximately 50% of people with Proteus-like syndrome are found to have changes in the PTEN gene. In these cases, the inheritance is autosomal dominant.

    When should I see a Proteus-Like Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus-Like Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Proteus-Like Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus-Like Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus-Like Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus-Like Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus-Like Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus-Like Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus-Like Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus-Like Syndrome doctors near me?

    Look for the filter feature on the left side of the Proteus-Like Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus-Like Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus-Like Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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